It’s here. It’s #MillionsMissing week! Are you ready to gather allies, express your art, share your story, tune into some great performances, and celebrate our community? There is a lot to do, and you should only participate when and how you are able. Our numbers are mighty, so you are not in this alone. Together, we
Over the last many months, social media platforms like Twitter, Facebook, and YouTube have been flooded with disinformation about COVID-19. We wanted to make you aware of the problem, equip you with tools for how to recognize and respond to disinformation, and enlist your help keeping our community safe. According to numerous reports, much of this disinformation comes from organized
At the Sundance Film Festival in January, I had the privilege of watching Crip Camp, a documentary film that premieres today on Netflix. It’s about building a community in spite of a world that excludes you; that often tries hard to deny your humanity or ignore your very existence. It’s about how that community birthed a disability
Covid-19 resources for people with me COVID-19 Support Group Join our facebook support group for COVID-19. This group is a space for COVID-19 Long-haulers who suspect they may have ME, ME patients who have COVID-19, and people with ME who want to mentor long-haulers. Read Our Report Welcome to #MEAction’s page for information about the
Exciting News for 2020! #MillionsMissing London is in Parliament Square on 13th May. London will play host to a major demonstration aimed at highlighting the plight of ME sufferers across the globe. London #Millions Missing is thrilled to announce that they are collaborating with the Florence Nightingale Museum in her bicentennial year, 200 years after
#MEAction sat down for an interview to catch up with songwriter and ME activist Kaeley Pruitt-Hamm, who in 2017 inspired MEAction to launch a virtual art and music concert called BedFest to showcase the artistic talent of the ME community, and also to explore the experience of having ME through poetry, art and music. Kaeley
This article references the 2019 Postcards to Doctors initiative. Find the page for Postcards to Doctors 2020 here. We’re incredibly pleased to announce that we not only met but exceeded our initial goal of sending 6,000 postcards out into the world! And we could not have done it without you. As always, I am bowled over
On Thursday 19th December, 2019 the Scottish Parliament’s Public Petitions Committee met to continue its consideration of #MEAction Scotland’s petition, PE1690, which calls for a review of treatment of people with myalgic encephalomyelitis (ME) in Scotland. Appearing before the committee to give evidence were Jeane Freeman, the Scottish Government’s Cabinet Secretary for Health and Sport,
The Associated Press published a syndicated article last week profiling a study being done by the NIH on ME/CFS. The article describes well the severity of ME, and the immense challenges our community faces, including lack of treatments, difficulty getting a diagnosis, skeptical doctors and a lack of knowledge about the disease. While the AP
Note: if you prefer to download this list as a pdf you can download it by clicking here. Make a list of whatever you can do in advance and a schedule for completing your tasks with plenty of wiggle-room. The holidays are often jam-packed with tasks. Sit down nowish and make a list of everything
