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Australia: National TV Program Debates ME/CFS, Raises Ire of Community

October 30, 2018 6 Comments

Australia: An hour-long, nationally televised discussion panel on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) on Oct. 16 has raised the ire of many in the patient community, who claim the program overrepresented the likelihood of recovery from the illness, and promoted harmful graded exercise therapy (GET). Insight is a weekly current affairs show hosted

#MEAction Scotland launch their Manifesto

October 28, 2018 No Comments

After many, many months of writing, editing and revising, #MEAction Scotland is finally ready to launch its manifesto! Thank you to all the volunteers and members of the community who have added their ideas and thoughts to shape this document. The purpose of this document is to highlight those areas where we feel our lobbying

New York #MEAction Protests Per Fink at Columbia University – Here's what happened

October 25, 2018 16 Comments

The protest against the Danish physician, Per Fink, last week demonstrates how our community takes action in a variety of ways to fight for people with myalgic encephalomyelitis (ME). 1) #MEAction New York organized a protest outside the conference where Fink was presenting on his unscientific theory of Bodily Distress Syndrome, which includes ME and

It has been an Intense Week!

October 22, 2018 No Comments

It Has Been A HUGE Week in the U.S.! This last week has been a bit of a whirlwind – we’ve never been busier! It’s been a week of advancing the cause of health equality for people with myalgic encephalomyelitis through the launch of the Unrest continuing medical education program and the expansion of our US advocacy team. It’s also

ACTIVISTS PROTEST SPEAKER AT COLUMBIA UNIVERSITY CONFERENCE

October 19, 2018 No Comments

ACTIVISTS PROTEST SPEAKER AT COLUMBIA UNIVERSITY CONFERENCE Human Rights Abuser Per Fink is Not Welcome in New York Follow the story at: @meactnet and #ScienceNotStigma FOR IMMEDIATE RELEASE October 18, 2018- New York, NY Activists with NY #MEAction will converge on Columbia University Saturday, October 20that 8:00 a.m. to protest Danish Physician Per Fink’s appearance at the 4thColumbia

UK: More than 250 GPs Attended ME Workshop at the RCGP Conference

October 18, 2018 1 Comment

A week after the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow on the 4th – 6th October, it seems appropriate to reflect on the impact of the conference on educating GPs about myalgic encephalomyelitis (ME). The RCGP Conference is the must-attend event of the year for GPs and practice team colleagues, showcasing

CDC Update: NYS Dept. of Health and #MEAction Bid for Contract

October 18, 2018 4 Comments

On August 27th, #MEAction published a petition calling for the U.S. Center for Disease Control and Prevention (CDC) to immediately halt its plan to issue a sole-source contract – meaning there was no true competitive bidding process in place – to the Pacific Northwest Evidence-based Practice Center (EPC) for conducting a literature review for myalgic

Emerge Australia Releases Report on National Survey of ME Patients

October 12, 2018 1 Comment

Emerge Australia has released a report on the findings of a survey of more than 600 Australians with ME/CFS. The National Survey of the Health and Wellbeing of People with ME/CFS was carried out in conjunction with ASDF Research, and highlights the need for greater understanding of ME/CFS in Australia.

#MEAction Sends Recommendations to CDC to Update its ME Website

October 11, 2018 No Comments

This past July, 2018, the U.S. Center for Disease Control and Prevention (CDC) launched new webpages about myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) geared to practitioners. ME advocates, clinicians and researchers had provided feedback about updates to these pages but not all of their recommendations were taken on board. As a result, some sections of the site

Karina Hansen is Free from State Guardianship!

October 10, 2018 9 Comments

At long last, Karina Hansen is now free from state guardianship! A local court in Denmark released Karina from state guardianship after an independent psychiatrist determined that she does not suffer with any psychiatric illness, understands the role of her state guardian and would like him removed from her case, and that she is capable of managing

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