Get caught up! Start with Cochrane Analysis: What’s Here, What’s Missing, Conclusions What has gone on before Cochrane Reviews are well-known systematic reviews of studies in healthcare, and are internationally recognized — enough to be considered the last word in healthcare as far as some medical publications are concerned. In 2019, Larun et al. wrote
Earlier in 2021, concerns were raised by people with ME about the REGAIN clinical trial and whether there was a risk to people suffering from post-viral symptoms, particularly post-exertional malaise. The REGAIN study aims to find out which of two treatments is better for helping people recover after being in hospital with Covid 19 –
On May 16th the U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021. You might not realize it from the above description, but this is the latest milestone
Update: slide deck for town hall The U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021. To learn more about the CDC draft evidence review and #MEAction advocacy
The Director of Scientific & Medical Outreach at #MEAction, Jaime Seltzer, has partnered with Physician Scientist and Associate Professor of Epidemiology at Columbia University Mailman School of Public Health, Dr. Mady Hornig, to conduct a massive survey aimed at providing clinicians and researchers with key data that could assist in generating better care for and
At #MEAction we are all about bringing people together. So we are excited to announce the return of our community Gatheround (previously known as Icebreaker) events for #MillionsMissing! Join the #MEAction community for a fun gathering, where you will be able to connect with people around the globe, participate in easy get-to-know-you games, and chat
Join us, online or in person, 1-3pm Friday 7 May at a private house in Millswood, to be part of the global event, #MillionsMissing.It will be held in a private home so noise, light and temperature can all be controlled, and those who need to can put their feet up or lie down. There are
#MEAction is excited to share two pieces of work from the Writing From Our ME Lives writing group. We will be sharing more work in the coming days! Hope you enjoy their work. If you are interested in joining the next Writing From Our ME Lives meeting, they meet on every Thursday at 11am PST.
It’s a wrap! Last weekend concluded the final session #MEAction’s first ever ACTIVIST CAMP!, a teach-in series for activists in the United States. We are so proud of this program and what it has accomplished. Congrats to our new grads! #MEAction ACTIVIST CAMP! aimed to deepen our campers’ engagement with activism – teaching our collective
The #MEAction Pacing Guides discuss pacing, a self-management strategy for activity useful in infection-associated chronic illnesses like ME/CFS and Long COVID, where post-exertional malaise (PEM) is a feature. Each guide discusses PEM and ‘radical rest’, and gives examples of how to adapt vital activities, including breaking longer activities into smaller, more manageable tasks. #MEAction created
