Search Results for: PACE – Page 10

JNNP to publish edited rapid response by MEAction UK.

MEAction UK have been in communication with the BMJ and are delighted to announce that the Journal of Neurology, Neurosurgery & Psychiatry (JNNP) are publishing an edited version of our rapid response to  ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’. We

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DHSC interim delivery plan on ME/CFS

My full reality: the interim delivery plan on ME/CFS is a great opportunity for the ME community to make our voices heard. Reading the interim plan and completing the survey is a big committment for #pwME so we have put together a document with advice on how to save your answers, a list of FAQs

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A red background with slight paper texture to it is displayed with Body Politic mustard yellow in a wave shape at the bottom. Above the background there are three white illustrations of forearms with hands in a fist rising from the bottom of the image. At the top, center is the text: We are stronger together. It is flanked on both sides by the Body Politic and #MEAction logo.

 #MEAction & Body Politic: We Are Stronger Together

Announcing #MEAction and Body Politic’s new collaboration: we are excited to announce that #MEAction will now host Body Politic’s advocacy work as a project of #MEAction. Many of you know that Body Politic’s support group has officially closed. This was a devastating loss to the community – we know so much of the Long COVID

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MEAction UK submits a rapid response to the JNNP in support of NICE.

Below is the text of MEAction UK’s rapid response submitted to the JNNP article that was published 10th July 2023. In the article ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’ published in the Journal of Neurology, Neurosurgery & Psychiatry on 10th

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white rectangle image with multi-colored water colors splashed on the background. In black outlined letter the words: Severe ME Artists Project 2023. The #MEAction logo is in the bottom righthand corner.

Severe ME Artists Project 2023

#MEAction is thrilled to announce our Severe ME Artists Project 2023 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase your artwork, whether it be writing, photography, drawing,

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On a red background the words, ​​"Bed activism" at the Washington Monument & A Politics of Care by Ben HsuBorger in white. The #MEAction logo in the bottom righthand corner.

​​”Bed activism” at the Washington Monument & A Politics of Care

I’ve been involved in planning many #MillionsMissing actions during my time with #MEAction, but for me, protesting at the Washington Monument this past May 12th was a different—even surreal—experience.  The installation of cots was so large that I could see people coming across the mall to see what it was. I would tell them that

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#MEAction Maryland State Chapter Support meeting

Join #MEAction Maryland on the 3rd Tuesday of each month at 4 pm EST for our monthly support call!  This monthly call will focus on creating support and community for pw/ME. This will be a space to connect with fellow pw/ME, exchange helpful resources, and feel heard and understood in a safe and supportive environment.  

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#MEAction Maryland State Chapter Support meeting

Join #MEAction Maryland on the 3rd Tuesday of each month at 4 pm EST for our monthly support call!  This monthly call will focus on creating support and community for pw/ME. This will be a space to connect with fellow pw/ME, exchange helpful resources, and feel heard and understood in a safe and supportive environment.  

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#MEAction Maryland State Chapter Support meeting

Join #MEAction Maryland on the 3rd Tuesday of each month at 4 pm EST for our monthly support call!  This monthly call will focus on creating support and community for pw/ME. This will be a space to connect with fellow pw/ME, exchange helpful resources, and feel heard and understood in a safe and supportive environment.  

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