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![2023 #MillionsMissing in white and black on a red background. The words, Join the UK and Scotland Digital Campaign in black marker font towards the bottom. The #MEAction UK and Scotland logos are the bottom left and right hand corners.](https://www.meaction.net/wp-content/uploads/2023/04/Join-the-UK-and-Scotlands-digital-campaign-this-MillionsMissing-300x157.png)
Join the UK and Scotland’s digital campaign this #MillionsMissing
May is nearly here and that means so is ME Awareness Week and #MillionsMissing! This year, #MEAction Scotland and #MEAction UK are returning to the central theme of #MillionsMissing – drawing attention to the people missing from their previous lives and wider society because of ME. Most people don’t understand how widespread ME is, or
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DHSC released a new progress Report
DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue. This is dated from December 2022.You can read the full report using the link below: DHSC Information Bulletin Dec 22 FINAL MECFS updated
![A photo from Millions Missing Scotland of a group of 20 protestors outside the Scottish Parliament. They’re looking serious and holding signs that say Millions Missing, and a pledge signed by MSPs. Many are wearing red ME Action t-shirts. A yellow icon of a person is overlaid next to them with an arrow pointing to it and the words ‘Could it be your MSP?’ A red banner along the bottom says ‘Share your story and ask your MSPs to stand up for people with ME.’](https://www.meaction.net/wp-content/uploads/2023/01/Debate-article-image-300x157.jpg)
Ask your MSPs to stand up for people with ME
Sue Webber MSP’s motion about ME will be debated in the Scottish Parliament on Thursday 2nd February – and your MSPs should be there! The motion calls on the Scottish Parliament to recognise the outcomes and recommendations of the stakeholder report on ME, including education of healthcare professionals and development of specialist services. We’re pleased
![Red graphic with white text which says '#MEAction Scotland’s November community call.' Below is a graphic of a pair of hands typing on a laptop. On the screen is nine people on a video call and there are speech bubbles on either side.](https://www.meaction.net/wp-content/uploads/2022/12/MEAS-Nov-community-call-300x157.png)
#MEAction Scotland’s November Community Call
#MEAction Scotland’s latest community call took place on Wednesday, 23rd November. People with ME from across Scotland joined four volunteers to catch up on what #MEAction Scotland has been doing since the summer. First up was feedback on a very successful #MillionsMissing event at the end of September. The main focus of that event was
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What Primary Care practitioners need to know about the new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome in adults
Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as well as Charles Shepherd of the ME Association and Luis Nacul of the London School of Tropical Medicine. As members of the NICE guideline development committee, the authors wrote this paper with GPs and primary care
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#MEAction’s BOLD Press Strategy Leads to BIG Press Payoff!
Taking BOLD ACTION with our press outreach has led to national media writing about ME.
![A group of people stand outside the Scottish Parliament building at Millions Missing Scotland 2022 looking serious. Many of them are wearing red ME Action t-shirts. Some people are holding signs that say Millions Missing. In the middle, someone is holding a large piece of card with a pledge on it and signatures of MSPs. One person is in a wheelchair and one is on a mobility scooter.](https://www.meaction.net/wp-content/uploads/2022/10/Millions_Missing_28_09_22-283-300x200.jpg)
Members of the Scottish Parliament pledge their support for #MillionsMissing
On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made up for in engagement from
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DHSC release progress update.
DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue.
![#MEAction United Kingdom logo on a red background with the words DHSC have released details of their process in the Development of a Delivery Plan on ME in white.](https://www.meaction.net/wp-content/uploads/2022/08/DHSC-have-released-details-of-their-process-in-the-Development-of-a-Delivery-Plan-on-300x157.png)
The DHSC have released details of their process in the Development of a Delivery Plan on ME
On the 12 May, World ME Day, the former Secretary of State for Health and Social Care, Sajid Javid, announced the Government’s intention to develop a cross-Government Delivery Plan on ME/CFS for England. This intention was published in a Written Ministerial Statement laid in Parliament. Development of the plan will build on the recently published
![MEAction Logo and the words Volunteer Survey written over a red box and a red background.](https://www.meaction.net/wp-content/uploads/2022/07/United-States-Volunteer-Survey-Featured-Image-1-300x157.png)
New #MEAction Volunteer Survey
#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link will be available on #MEAction’s website until Friday, July 29th. We encourage everyone to thoughtfully consider each question, fill out their responses, and submit the survey by the due date. The survey consists of 12 questions
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NICE guideline to be implemented in Scotland
NICE news for Scotland! Throughout the development of the NICE guideline for ME/CFS, #MEAction Scotland has been in regular contact with the Scottish Government about the change needed in Scotland. Now that the guideline has been published, the government has got in touch to involve us in a development. What is the plan?The government plans
![University of the West of Scotland Looking for Research Participants Featured Image](https://www.meaction.net/wp-content/uploads/2022/02/University-of-the-West-of-Scotland-Looking-for-Research-Participants-Featured-Image-300x157.png)
Be part of designing UWS research into ME and long COVID
UPDATE: The research team have let us know that they’ve received a huge response to this request and they now have the information they need. They’ll be in touch with people individually if they are eligible to participate in the study. If you got involved, thanks for your support! Researchers at the University of the