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Advocacy
#MEAction

Office of Long COVID at HHS Closing

Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are

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Red graphic with text: "Trump Admin Cuts Funding for ME/CFS Collaborative Research Center at Columbia University" and a #MEAction logo.
Actions
#MEAction

Trump Cuts Funding for ME/CFS Centers at Columbia University

We are writing to you with an urgent call to action. The Trump administration has cut funding for the Center for Solutions for ME/CFS at Columbia University as part of a broader $400 million funding termination at the university. This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research

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rectangle image with red background and two large white circles. One circle has the #MEAction logo and the words, #MEAction's medical flashcards featured by CDC. Second white circle has a blue megaphone. there two smaller blue circles in the image.
#MillionsMissing
#MEAction

#MEAction’s Medical Flashcards Featured by CDC!

#MEAction is excited to announce that the Anki Flashcards we created about ME/CFS and infection-associated diseases have been recommended by CDC on its new ME/CFS page for medical students! Anki flashcards are a digital learning tool used by medical students to retain medical knowledge.   The deck was created for our #TeachMETreatME campaign with #MEAction Georgia

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All News
Laurie Jones

The RECOVER-Treating Long COVID (RECOVER TLC) The Path Forward

The RECOVER-Treating Long COVID (RECOVER TLC) Kick-off Meeting was Sept 23-25 in person and over Zoom. I had the privilege of attending over Zoom and Jaime Seltzer, #MEAction’s Scientific Director, represented the needs of the ME community in person and as an invited member of a panel on clinical trial design. There were many speakers

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