Read the Latest in ME News and Campaigns
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Researchers, Clinicians and Patients: Submit a Manuscript on ME to WORK Journal
Researchers, patients and clinicians are invited to submit a manuscript for consideration in a special issue of WORK: A Journal
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Help ME/CFS Research and Clinical Care Research Win the Frontiers Spotlight Award! Download and View the Research!
A series of 24 papers on ME/CFS called “Advances in ME/CFS Research and Clinical Care,” published in 2018-2019 in
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Support Severe ME Day: Join the Silence Challenge
August 8th is Severe ME Day. It is a day of awareness raising for those suffering severe Myalgic Encephalomyelitis
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A petition cloaked in the respectability of research
#MEAction UK has written a letter with regards to a survey that states it is to protect specialist CFS/ME
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#MEAction Volunteers-of-the-Month: MEpedia Stalwarts
#MEAction is honored to announce our volunteers-of-the-month, Innie and Pyrrhus, who are extremely dedicated contributors to MEpedia, our wiki encyclopedia for the
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#MEAction Responds to Attacks on ME Community in The Guardian and Psychology Today
Listen to the article: Part 1: Part 2: In the past two weeks, The Guardian/The Observer and Psychology
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Announcing the Art Picks for Postcards to Doctors
#MEAction is launching an initiative that will allow you to help educate your local clinicians, called Postcards to Doctors!
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UK Teenager with Severe ME Threatened with Forced Institutionalization
The ME community is rallying around 17-year-old Jehan “Gigi” who has been hospitalized with severe myalgic encephalomyelitis (ME) in
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#MEAction Seeks Applicants for Blue Ribbon Fellowship at Bateman Horne Center
Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical
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Announcing #MEAction’s Blue Ribbon Fellow: Investigating the Role of Folate in ME
The #MEAction Blue Ribbon Fellowship is excited to announce that medical student, Christopher Larrimore of Nova Southeastern University, has
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Australia’s ME/CFS Advisory Committee Releases Final Report
The final report from Australia’s National Health and Medical Research Council’s (NHMRC’s) ME/CFS Advisory Committee, established in late 2017, has been released. The committee was tasked with advising NHMRC’s CEO on current needs for research and clinical guidance for ME/CFS in Australia.
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Enrolling: Naviaux Lab Metabolomics Study
Who: Looking for adult women with ME, Lyme’s Disease (post-treatment), or healthy controls that are currently living in Southern
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Sign a petition to ask the EU for funding for biomedical research
Hello EU! The best way to combat a hopeless situation is to act! Please help us by signing a
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Aid Without Asking: How to Support Someone with ME
The love of my life battles ME/CFS. It’s a disease that my father has also struggled with since I
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Photographer Seeking Bay Area Subjects to Tell Story of ME
A Bay area-based photographer is seeking people with myalgic encephalomyelitis (ME) who are willing to share their stories and to be
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Australian Teenager with Severe ME Describes Forced Psychiatric Treatment
Originally published on ME Australia. by Sam* Sam (*not her real name) is a teenager living in Australia’s largest
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The ME/CFS Harvard Collaboration Holds its First Symposium
By Christopher Armstrong, PhD, OMF Science Liaison When the Harvard ME/CFS Collaborative at Harvard Affiliated Hospitals was initiated last
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#MEAction Launches its U.S. State Chapter Initiative
We’re so excited to announce we’re growing our community’s impact through the expansion of #MEAction USA’s formal State Chapters.
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Volunteers: the bedrock of every #MEAction Scotland campaign
Volunteers are at the heart of everything #MEAction Scotland does. We are always looking for more people to help
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I’m angry, but I’m not alone.
I’m angry, but I’m not alone. Hi, my name is Ben HsuBorger, Director of Global Community and Campaigns for
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Why the Fight is Personal
I am so honored to work with the #MEAction community on a daily basis. Our organization is fighting hard
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Hannah Bowlus: Fighting Inequality, Finding Power in Community
I’m Hannah Bowlus and I’m the administrative assistant at #MEAction. I take care of basic things like mailing
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Congressman Jack Bergman becomes Champion for ME!
Up with the Marines! We are so pleased that Congressman Jack Bergman (R, MI-1), a former Marine general, has
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Introducing #MEAction’s 2019 ME Research Summary
We are thrilled to announce the release of our 2019 research summary reviewing the most current and important research into
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Call for Artists! Sending postcards to doctors!
PLEASE NOTE: The Unrest CME has now expired. If you have postcards remaining, please direct your providers to this
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Jaime Seltzer: Science Makes the Impact
People with ME are an incredibly science-literate patient population, even if that isn’t by choice: it’s the gaps in
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As I Age with ME
By Marianne Granger In my forties I was moving forward fulfilling my drive to be a community organizer/communicator/coach (my
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Erin Roediger: Igniting a Fire for ME
As the U.S. Advocacy Manager for #MEAction, I have the great pleasure of connecting fully to my life’s purpose:
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Action Alert: Support A Funding Increase for ME!
We need YOU to contact your Senators. Your voice makes all the difference. Our champion, Senator Markey, led two
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We need Effective, Strategic, and Respectful Engagement from CDC
On June 3rd the CDC held its latest MECFS Stakeholder Engagement and Communication (SEC) Webinar/Conference Call with the ME
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Why #MEAction is Taking Action towards the CDC on Two Fronts
#MEAction has announced two CDC-related advocacy actions today and yesterday. We are asking you to contact your Senators to
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Meet the #MEAction Staff: Espe Moreno
I am delighted to be part of the series in which you are getting to know the #MEAction staff!
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Meet the Staff: Holly Latham
It is an honor to volunteer and work for #MEAction. #MEAction came to me at a time in my
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Hundreds gather for #MillionsMissing Glasgow
#MillionsMissing Glasgow on 12 May, 2019, was a huge success, and took place in glorious sunshine which is fairly
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Thank The Senate Resolution Co-Sponsors!
Thank The Senate Resolution Co-Sponsors! This past weekend we celebrated the passing of the bipartisan Senate Resolution, S.Res. 225,
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ME Friendly Forms of Escapism, and How Best to Undertake Them
Jack Croxall is an author, scriptwriter and blogger living in Nottinghamshire, UK. He fights ME both in life and
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Meet the #MEAction Staff: Laurie Jones
Meet the #MEAction Staff! Over the next couple of weeks, the staff at #MEAction will be sharing their experiences
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Historic Congressional Resolution Passes for ME!
Senate Resolution passed! This is a great victory for all people with ME.
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Enrolling: EDS Genetics Study
What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have
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A Letter from Jennifer Brea about her ME Remission
Listen to the article: #MEAction co-founder, Jennifer Brea, wrote this letter to the community about her remission of
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Read #MEAction’s Request for Information response to the NIH
The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI,
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We are building a movement at #MEAction UK. Join us!
#MillionsMissing – organised by #MEAction – has been such a successful campaign this year, and we thank everyone in
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We did it! This is what the #MillionsMissing Look Like.
It has been a big week, with over 100 public and virtual events happening across the world! We are
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Enrolling: Stony Brook University ANS Study
Who: Researchers at Stony Brook University– funded by the National Institue of Health What: The goal of this study is
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#MillionsMissing from ME: 2019 Stories
We asked you, the #MillionsMissing from ME to tell us your stories. We are grateful for all that you’ve
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Remembering the Forgotten: How AMMES Lessens Isolation and Neglect
Erica Verrillo is the president of the American ME and CFS Society, a 501(c)(3) nonprofit. May is the month
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Help Simmaron Research AMPlify Therapies for ME!!
Simmaron Research is conducting a one-of-a-kind study to analyze data from ME/CFS patients who respond to treatments like Ampligen®, IVIG, and cidofovir, and we need your help funding this data analysis! Our goal is to publish peer-reviewed data to stimulate treatment trials and inform rigorous trial design ASAP!
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Twitch Gaming Show Fundraises for #MEAction!
Rat Queens, a show on the popular Twitch channel, HyperRPG, is hosting a fundraiser for #MEAction this Wednesday, May 8th
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South Carolina Raises Awareness about ME
My name is Robert Jacobs, MD and I am a retired Physician and caregiver for my wife who has
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Urgent – Contact Your Senators Now to Co-sponsor the ME/CFS Awareness Day Resolution
***UPDATE: THIS ACTION IS NOW OVER*** Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness
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#MillionsMissing from ME: Your Stories
Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. We received heart felt
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Career and Loss for People with ME
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Australia: Sign the Petition to Provide Disability Services to People with ME!
Australians with ME/CFS are routinely rejected from the country’s National Disability Insurance Scheme (NDIS), because the Australian government doesn’t consider ME/CFS to be a permanent condition for most living with the illness. Sign this petition to support Aussies with ME/CFS and demand policy change!
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The Unique Challenge of Aging with M.E.
Aging can be a challenging time for anyone but people with the debilitating, chronic disease of myalgic encephalomyelitis (ME) often