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Americans Disabled By Long COVID and ME/CFS Protest Biden’s Claim that “Pandemic Is Over.”
Protesters disabled by Long COVID and myalgic encephalomyelitis (ME/CFS) are protesting at the White House sidewalk TODAY at 12 p.m. ET to say that the “pandemic is not over,” and to call on President Biden to declare Long COVID and ME/CFS a national emergency.
New date for #MillionsMissing Scotland
Following the postponement of #MillionsMissing Scotland, the demonstration has been rescheduled to Wednesday 28th September. #MillionsMissing Scotland will now
LONG COVID and ME/CFS Activists Plan Civil Disobedience Protest at White House on Sept. 19
The LONG COVID and ME/CFS community are planning a protest in front of the White House this Monday, Sept.
#MillionsMissing Scotland postponed
The #MillionsMissing Scotland demonstration, due to take place on Wednesday 14th, has had to be postponed. Following the death
#MillionsMissing London is Postponed
Due to the death of her majesty Queen Elizabeth II and the period of national mourning that we are
NIH Extends Funding for ME/CFS Research Centers
The National Institutes of Health (NIH) has taken steps to fix a “funding gap” in the timing of research
Virtual Actions For #Millions Missing London-Social Media Action and Letters/emails to Wellcome Trust
We are asking all our supporters, people with ME and people with other complex chronic conditions to lobby the
Protecting the Most Vulnerable: Complexities of Vaccines and Chronic Illness
It has been over a year since the COVID-19 vaccine became available, and a subset of people with myalgic
Ask your MSPs to join us at #MillionsMissing Scotland
Whether or not you can join us in person at this year’s #MillionsMissing, you can help to make it
How Dept. of Labor can better track disability from chronic illness
Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor
Facets of ME: Travel Tips
Welcome to August’s Facets of ME! If you are unfamiliar, #FacetsOfME is a new #MEAction feature this year where
The DHSC have released details of their process in the Development of a Delivery Plan on ME
On the 12 May, World ME Day, the former Secretary of State for Health and Social Care, Sajid Javid,
Severe ME Artist Project 2022 — Gallery
A collection of works by artists with severe ME.
Just In Time for the School Year: A New Pediatric Pacing Guide
#MEAction is excited to share a new and much-needed resource just in time for back to school! We are
An update on the Scottish implementation of the NICE guideline
As we announced in February, the Scottish Government has committed to implementing the new NICE guideline for diagnosis and
Dept. of Labor hosts dialogue on Long COVID in the workplace
The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges
#DisabilityPrideMonth: Listen to The Century Foundation’s podcast Off-Kilter
As part of #DisabilityPrideMonth, The Century Foundation’s podcast Off-Kilter has been hosting a series of conversations featuring Disability Economic
New #MEAction Volunteer Survey
#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link
#MEAction Recognizes & Celebrates Pride Month 2022!
#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked
Top 10 ME/CFS Recommendations for the Long COVID National Research Action Plan
#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on
Severe ME Artists Project 2022!
#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those
NEW YORK ACTION ALERT: NEED NY GOVERNOR KATHY HOCHUL TO SIGN ME/CFS BILL INTO LAW!
Dear New York Community- We need urgent action now to persuade New York Governor Kathy Hochul to sign our
Facets of ME: Temperature Dysregulation
Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or
Dept. of Labor Updates Information on ME/CFS for Workers, Employers
The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at
#MillionsMissing: 7 Days in Self Portraits with ME/CFS
After taking #MEAction’s photography workshop with photographer Lucia Doynel for #MillionsMissing, Terra Dumont produced these stunning photos as a
U.S. Healthcare Coding Revisions Enable Tracking of ME/CFS Cases
Since 2015, the 1-2.5 million Americans with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been effectively nonexistent, at least as
We can’t believe it! Another $50k matching gift!
I am so thrilled to tell you that we have another $50,000 (£39,873.50) matching gift for #MEAction’s #MillionsMissing fundraiser.
Email Doctor Unger about the Misinformation at CDC
People with ME deserve accurate & clear ME/CFS education from the Centers for Disease Control, not recycling of discredited
#MillionsMissing: Videos Created by our Amazing Community
This year’s #MillionsMissing, our community created some amazing videos that we are privileged to highlight. This is just a
#MillionsMissing MAY 2022 Wrap Up
Thank you for sharing your stories, for illustrating our common thread so that our governments, healthcare systems, and other
New T-Cell Research at the University of Massachusetts
#MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, sat down with Dr. Liisa Selin, MD, PhD, and Dr.
Exciting news about Mayo Clinic!
We’ve got some very exciting news this week! Clinicians working at the Long COVID clinic at Mayo Clinic’s campus
New Volunteer Leadership Program Led by Experts!
We are thrilled to announce that Chimére Smith and Terri Wilder will be joining #MEAction as consultants to execute
Research Update: The NIH Intramural ME/CFS Study
National Institutes of Health researchers who began what may be the deepest biological investigation ever of myalgic encephalomyelitis/chronic fatigue
#MEAction Meets with the Department of Labor
#MEAction continues our advocacy for the #MillionsMissing in a recent meeting with the Office of Disability Employment Policy (ODEP)
#MEAction Scotland holds its first community call
Last week, #MEAction Scotland volunteers held the first in a series of community calls. The online meetings will take
Call-to-action for California: Centers of Excellence
We have a golden opportunity to secure substantial funds to address the clinical care crisis in ME/CFS and Long
Elevating stories of the #MillionsMissing to HHS leadership
#MEAction is advancing ME/CFS advocacy efforts through our ongoing engagement with U.S. federal agencies, including at the Department of
#MEAction Presents: Not Going Quietly Screening & Panel
We have a very exciting opportunity to come together and watch the award-winning documentary Not Going Quietly. We also
ME/CFS on TV (Part 3)
RETURN TO PART 1 OF THIS SERIES HERE ME/CFS ON THE ITALIAN TV SCREEN: A VIRTUOUS MODEL by Giada
The Virtual Choir is Back — Submissions now Open!
We are excited to announce that submissions are now open to join our next virtual choir! We have so
Facets of ME: Cognitive Dysfunction
Welcome to our second Facets of ME! This is an educational feature in which we choose one aspect of
ME/CFS On TV (Part 2)
RETURN TO PART 1 OF THIS SERIES HERE “THAT’S WHY THEY DON’T BELIEVE YOU, YOU DON’T LOOK SICK!”: FICTIONAL
You can Still Help Madeline!
“Madeline” is a woman who has been suffering with a post viral syndrome for 40 years which includes Severe
Black History Month
In honor of Black History Month, #MEAction has gathered a collection of articles, videos, and groups that features Black
#MEAction Continues to Get Press for ME
#MEAction continues to prioritize getting ME in the press. We are very thankful to be featured in USA Today,
NIH Comes up Short Once Again
No Increase in Funding in Latest Plan for ME/CFS Collaborative Research Centers The National Institutes of Health (NIH) has
An Update from #MEAction
#MEAction has been a leader in the fight for health equity for people with Myalgic Encephalomyelitis for the past
#MillionsMissing 2022 Will be in Two Parts
This year, we are excited to announce that #MillionsMissing will be held in two parts: May and September! #MillionsMissing
NICE guideline to be implemented in Scotland
NICE news for Scotland! Throughout the development of the NICE guideline for ME/CFS, #MEAction Scotland has been in regular
Be part of designing UWS research into ME and long COVID
UPDATE: The research team have let us know that they’ve received a huge response to this request and they
Facets of ME
We are excited to launch an all-new educational feature – Facets of ME! We will be diving into the