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Share this film and join the petition to reform the NICE guidelines
On Friday, 30th October, Change For M.E. Change For Us launched their short film, The Last Great Medical Cover
Letter: Ask HHS to Investigate PACE
Dear #MEAction users, Please find below a letter to HHS (CDC and AHRQ) calling on them to investigate the PACE
Government orders release of PACE trial data
The Information Commissioner’s Office (ICO) has ordered Queen Mary University of London to release anonymized PACE trial data to an unnamed
#MEAction Google Hangout: UK
This is the second of our new series of periodic calls for #MEAction co-founders Jen Brea and Beth Mazur
Prof. Jonathan Edwards: PACE trial is "valueless"
OPINION PACE is valueless for one reason: the combination of lack of blinding of treatments and choice of subjective
Add this PACE petition counter to your website
Use this code to add a PACE petition counter to your blog or website. It links back to the
NIH Funding for ME/CFS extramural research will increase
From Bob and Courtney Miller: We are excited to share news that the NIH has elevated its research approach
NIH announces new clinical study and move to NINDS
Editor’s note – this is an emerging news story. Edits will continue to be made to this page as
Misleading PACE claims should be retracted
Given the weak and flawed methodologies of the PACE trial, which claims that CBT and GET led to the
PACE Trial Controversy Grows
In wake of David Tuller’s investigation, PACE investigators publish follow up study Last week, journalist David Tuller published a
Sign this letter to the Danish Prime Minister for Karina Hansen
Editor’s note: Michael Evison of ME Alliance has written this letter to the Danish prime minister about Karina Hansen’s case and
Send Birthday Cards to Karina Hansen
Editor’s note: Karina Hansen is young Danish woman with severe ME. In February 2013, she was forcibly removed from her
#MEAction Google Hangout (Friday October 30th)
We’d love to start hosting periodic calls to allow #MEAction members to chat informally with co-founders Jen Brea and
Investigative Journalist Exposes PACE Trial
Journalist and public health expert David Tuller completed yesterday the publication of his highly critical investigation into the UK’s £5
Letter to Burwell and Collins Demands Funding Equality
Uniting the ME/CFS community is not easy, but it has never been more important than right now. One thing
Canary in a Coal Mine at Good Pitch New York
Canary in a Coal Mine at Good Pitch New York Dear friends, family and colleagues, This Tuesday, Canary – a documentary
David Tuller Tears Apart PACE Trial
Health scientist and New York Times published journalist David Tuller today launched a damning critique upon the UK’s £5
Canary Live at Good Pitch New York
Canary in a Coal Mine will be one of seven films to take the stage at BRITDOC‘s Good Pitch
Australia: What is the fuss? Make a video for the Medical Research Fund
Maka a video about ME and make a fuss! (Australia)
Muscle defect studied in UK
Patients in the UK’s north east will benefit from muscle abnormality research put into action via hospitals.
CDC Funding Update from SMCI
SMCI Meets with Senate Appropriations Staff The Solve ME/CFS Initiative has posted an
Donate To Help The OMF Raise $33.3K By December 1!
The Open Medicine Foundation has just begun a fundraising campaign to raise $8.3K in donations and have it matched 3:1, which will result in $25K + $8.3 = $33.3K!
Tell Congress to Support Myalgic Encephalomyelitis Funding Equality
In the US? Find your state and sign the petition. Not in the US? Sign the global solidarity petition.
Visionary viral disease treatment needs funding
Imagine a drug that could treat almost any viral disease. We may only be a few years’ away, thanks to Dr Rider at MIT.
Neurology Now writes about CFS
Neurology Now on CFS Neurology Now recently posted an article targeted at neurologists with the headline “Beyond Tired: Is
Crowdsourcing information for a pharmacy M.E. resource
I’m working with a national M.E. charity, Action for M.E., as their Volunteer Pharmacist, providing information about pharmacy services, writing health
UK CMRC conference on October 13 and 14
UK CMRC conference to be livestreamed on 13 and 14 October Parts of this year’s UK CFS/ME Research Collaborative
Push to change ME/CFS NICE guideline
Minutes just released for the 15 July 2015 meeting of the cross-charity Forward-ME group record a discussion with Dr
The Atlantic publishes a nuanced push for public funding
The Tragic Neglect of Chronic Fatigue Syndrome With a surprisingly broad-ranging and detail-rich article by Olga Khazan entitled “The
Vote DAILY For National ME/FM Action Network To Win $100K In Aviva Contest For Research Of ME And FM!
Vote DAILY between October 6-23, 2015 in the Aviva contest to help the National ME/FM Action Network in Canada win up to $100,000 for research of ME and FM.
Poll: Should #MEAction sign this NIH Letter?
Bob and Courtney Miller are writing a letter to Francis Collins, Director of the National Institutes of Health (NIH) and Sylvia
Autoantibodies found in subset of CFS patients
A new German study published in Brain, Behavior, and Immunity by Loebel, et al. has found that Chronic Fatigue Syndrome* may
Give your Patient Opinion (UK, IR & Aus)
Independent organisation Patient Opinion wants to hear feedback on healthcare services from patients in Australia, Ireland and the UK.
Treadmill test shows who Ampligen may help
Hemispherx Biopharma research shows that CFS patients who can perform more than 9 minutes on a treadmill are more likely to benefit from Ampligen.
CFSAC – to be or not to be
CFSAC- Let’s Take Action ME community members were caught off guard when the proposed 2016 Senate appropriations bill zeroed out
Chronic Fatigue Syndrome Advisory Committee (USA) recommendations
USA’s CFS Advisory Committee wants bigger research, aimed at finding diagnostic tests, using Canadian Consensus Criteria and private-public partnerships to find drug treatments. It asks for $250 million annually, estimating ME/CFS costs the US up to $24 billion.
Help Us Put a Face on ME/CFS!
The Solve ME/CFS Initiative has launched a campaign to help increase awareness of —and ultimately research funding for—ME/CFS. The
Hidden Faces of M.E.
UK charity Action for M.E. are this week hosting a social media campaign and its aim is to raise
Validity of Chronic Fatigue Syndrome bolstered by research
Written by Brent Handel Originally published in The Lawyers Weekly June 26 2015 issue, reprinted with permission Chronic fatigue
Study shows immune differences in moderate and severe CFS/ME
New Australian study shows immune difference in moderate and severe patients. It may lead to a test based on these markers.
Let's Make a Million For Invest In ME!
We invite you to join the expanding international community of supporters aiming to raise £1000,000 for Invest in ME Charity’s Biomedical Research Funds by May 2016.
This Video Could Save your Life
The Use of Patient Blogs as a Care Resource Thanks to Greg Crowhurst for his incredibly kind review of
An interview with lead singer of Belle and Sebastian – on life with M.E.
Stuart Murdoch talking openly about his experiences of M.E., Los Angeles, August 2015 “This is a pop band that
Julie Rehmeyer on Science and ME/CFS
Julie Rehmeyer on Science and ME/CFS Julie Rehmeyer, an award-winning science and math writer, was recently interviewed about how
MedPage Today: ME/CFS is Gaining Attention
MedPage Today Focuses on Need for Recognition of ME/CFS and Research Funding MedPage Today, a news site for medical
UK CMRC Welcomes New Sponsors and Prepares for Research Conference
The UK CFS/ME Research Collaborative People with M.E. need better treatment and support. This can only be achieved through
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Bestselling Author's Latest Novel Features Girl with ME/CFS
Bestselling Author John Connolly’s Latest Novel Features Girl with ME/CFS “I know some people with ME, and tried hard
Join Team Solve – Fundraising for ME/CFS Research
It will take more than people with ME/CFS to achieve a world free of ME/CFS. It will take a committed team of many rallying together to effect change – Families, loved ones and friends coming together to make a difference and fund progress. Join Team Solve and help us Solve ME/CFS!
Stage Your Screening of Forgotten Plague!
We’re proud to announce that our new partnership with Tugg is now LIVE! Tugg is a “theatrical-on-demand” platform that
Sign the Petition: Need NIH Funding to Cure M.E. for Millions
AIDS Research took a death sentence and made it a manageable disease. ME-CFS needs the same level of effort