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UC Berkeley will Host Unrest Screening
Calling all people in the Bay Area – and beyond, You are invited to attend a screening of the
The Failure of Clinical Guidance for People with ME
ME advocate Mary Dimmock has written a comprehensive report about the flawed science that led to the recommendation of
ME/CFS Featured in Ms. Magazine
The Solve ME/CFS Initiative recently partnered with the widely-circled women’s magazine “Ms.” and connected them with renowned author Julie Rehmeyer to produce an impactful piece on ME/CFS for the Winter 2018 issue.
OMF receives $5 million donation from Pineapple Fund
Pineapple Fund was so moved by the outpouring of support from the patient community and the importance of OMF’s research that they have increased their donation to a total of $5 million for research.
The public testifies about ME
Dozens of people with Myalgic Encephalomyelitis and family members testified about the disease last December before the government agency
U.S. Advisory Committee Holds Meeting on ME/CFS
We need you! #MEAction is looking for volunteers who can help our team ensure that the CFSAC recommendations are
One Step Forward Educating the Medical Community about ME
A Medical Education Working Group has been created by the Chronic Fatigue Syndrome Advisory Committee (CFSAC) to provide recommendations
OMF Raises $1.2M to Ramp Up Collaborative Research Center at Stanford University
Announcing $1.2M in funding for the ME/CFS Collaborative Research Center at Stanford University led by Ronald W. Davis, PhD, Director of OMF’s Scientific Advisory Board.
Australia Announces a New ME/CFS Advisory Committee
Australia’s National Health and Medical Research Council (NHMRC), the Australian equivalent of the NIH, has announced the establishment of an ME/CFS Advisory Committee to advise NHMRC’s CEO, Professor Anne Kelso, on current needs for research into ME/CFS, as well as clinical guidance on the diagnosis and treatment of the illness.
Don't Miss the CFS Advisory Committee Meeting This Wednesday & Thursday
CFSAC is Wednesday (12/13) and Thursday (12/14) of this week! Please stand with us as we continue to urge
UNREST: Best Practices for Hosting a Community Screening
This guide will provide you with ideas for hosting your own impactful screening of Unrest that will be well-attended,
A New Non-Profit for ME & CFS Comes Online
The American ME and CFS Society is live, and we need your participation!
OMF Shares Resources to Help Children with ME/CFS Succeed in School
Dr. Faith Newton, Deleware State University, has created several resources to help children with ME/CFS improve their educational outcomes including the newest piece, a sample physician’s letter.
OMF Welcomes Jonas Bergquist, MD, PhD, to the OMF Scientific Advisory Board
#OMFScienceWednesday showcases Dr. Jonas Bergquist.
OMF Science Wednesday – Personalized Medicine
What is Personalized Health? – How researchers are using personalized health to understand ME/CFS
Innovative Organizing for UNREST in Boston: Don't Miss our Nov. 12 Screening
This is an exciting time for ME advocacy in Boston, Massachusetts. We are preparing for our November 12th, Sunday
What Did the Parliamentary Unrest Event Achieve?
Tuesday 24th Oct., 2017 will long be remembered as a significant day for anyone involved in ME politics.
Solve ME/CFS Initiative Announces 2017 Ramsay Award Recipients
The Solve ME/CFS Initiative (SMCI) announced the recipients of the 2017 Ramsay Award Program on Tuesday. The Ramsay Award Program, now in its second year, is a competitive grant that funds ME/CFS researchers at every stage of their careers. The five winning proposals receive one year of funding to research a diverse range of topics including immunology, bioenergetics, metabolomics, microbiome and neuroendocrine biology. The awardees hail from six different countries across the globe.
Finding Ourselves in Others: A Tale of Watching Unrest
This past spring I attended a screening for Unrest at the Ted Rogers Cinema in Toronto. Something powerfully transformative happened during the screening. Something that can’t be articulated in a review.
Living w/ ME Support Group: November & December Schedule
Our November and December schedule for the Living w/ ME Support Group has just been announced. Sunday, November 12:
OMF Introduces #OMFScienceWednesday
Learn about science that OMF is supporting. Follow OMF on Facebook and Twitter.
NICE: Listen to the People
As the U.K. prepares to review its national clinical guidelines for ME, it is high-time that the National Institute for
Stanford Med X Conference offers grant for patients & caregivers
The Stanford Medicine X conference is offering a scholarship to attend the April 28-29, 2018 conference, and receive funding for
How to Volunteer with #MEAction
Want to become a part of the global team of #MEAction volunteers? Interested in getting more involved in general
SMCI Holds ME/CFS Research Discovery Forum
The Solve ME/CFS Initiative (SMCI) held its second annual Discovery Forum Saturday October 14. The forum dubbed “a new era in ME/CFS research” brought together leaders from academia, government agencies, private clinics, biotech and research institutions to discuss developments in the field of ME/CFS research.
OMF TRIPLE TUESDAY: TRIPLE YOUR IMPACT FOR A CURE
Open Medicine Foundation is excited to launch Triple Giving Tuesday OMF which will run from Tuesday, Oct. 17, through
The End ME/CFS Tour in Boston w/ Linda Tannenbaum
Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Newton-Wellesley Hospital
Is the Dutch Health Council really going to Ignore 10,000 signatures?
Keep up-to-date on this issue by following the Twitter accounts @mecvsnieuws and @ME_gids More than 10,400 signatures for the Dutch
The End ME/CFS Tour in NYC w/ Linda Tannenbaum
Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at
OMF Strengthens Our International Ties – Corrected Link to Translations
OMF expands international outreach. Corrected link to the translation page.
A New Era for ME/CFS Research – SMCI’s Discovery Forum
Announcing Discovery Forum 2017: A New Era in ME/CFS Research
OMF's Triple Giving Tuesday is Coming Soon
Announcing the generous pledge of an OMF family to match donations 3 to 1 for Triple Giving Tuesday OMF.
OMF Strengthens Our International Ties
OMF begins translation program to strengthen international ties.
7 Reasons for Why It’s #TimeForUnrest
The #TimeForUnrest campaign has officially kicked off, and these are some of my reasons for for why it’s #TimeForUnrest.
1. People are dying.
Individual Community Symposium Talks Available on OMF YouTube Channel
Watch individual presentations and Q&A from the Community Symposium on the Molecular Basis of ME/CFS.
Breaking News: NIH Announces Results of ME/CFS Program Awards
The National Institutes of Health (NIH) announced today the outcome of its ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) competitive consortium grants, marking an unprecedented and tangible commitment from the federal agency to the disease. The NIH announced four recipient teams; one Data Management Coordination Center (DMCC) and three Collaborative Research Centers (CRCs).
NEW! Living w/ ME Support Group
Do you have ME and want to connect and share with others from around the world facing similar issues?
#MEAction Launches First New York Organizing Meeting
With the excitement and attention around the theatrical premiere of ‘Unrest’ in NYC this month now is the time
NIH announces centers for ME/CFS research
The NIH announced the grants for three Collaborative Research Centers (CRC) and a Data Management Coordinating Center (DMCC) that will work
Parliament EDM 271 Urges NICE to Update Guideline on ME
UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This
#MEACTION REJECTS SMILE TRIAL OF THE LIGHTNING PROCESS FOR CHRONIC FATIGUE SYNDROME
FOR IMMEDIATE RELEASE: 21/09/17 CONTACT: press@meaction.net #MEAction Rejects the Findings of the SMILE Trial of The Lightning Process for Chronic
As Summer Ends, A Warning to NIH
Johanna Kaiser, a person with ME, sent this open letter over Labor Day to the director of the National Institutes of Health (NIH), Dr. Francis Collins, and the director of National Institute of Neurological Disorders (NINDS).
Tools to Help Children with ME/CFS Succeed
New resources are available to help parents and educators provide accommodations and resources to help children succeed in school.
First of its kind! Nevada delegation sends letter to NIH on ME/CFS
On September 8th, Nevada’s full Congressional Delegation sent a letter to Director Collins of the National Institutes of Health urging him to “strengthen and accelerate” its work on ME/CFS.
Senate Appropriations Committee Recommends Restoring ME/CFS Funding
On Sept. 7, the ME/CFS community breathed a sigh of relief as the Senate Appropriations Committee recommended restoring the $5.4 million Chronic Fatigue Syndrome program under the CDC.
Did you see ME/CFS on PBS?
A national, televised program on ME/CFS aired this month on the show, “The White House Chronicle,” with host Llewellyn King.
Keep building momentum in Parliament for NICE review
MP’s are urging NICE to review Guideline on ME
Finding Connection within M.E.
During the initial years of having Myalgic Encephalomyelitis (ME), it is common to watch all your interpersonal ties slowly dissolve. Being in my early 20s, those around me craved excitement, adventure, and new experiences. Those things I desired too, but little of which I could do or offer in my current state of health.
LA LECTURA IMPORTA ¡VAMOS A OÍRLA!
La desaparición de mi capacidad de leer extensamente es una de mis mayores pérdidas. Lo intento, pero las páginas se petrifican. Ahora debo contentarme con unos pocos párrafos; algunos días con un par de líneas.
Hosting a Screening of Unrest? Learn How to Talk to the Press
If you are hosting a screening of Unrest in your community, you will want to reach out to your
Urge your MP to sign EDM 271!
We need your help for parliament to recognise the strength of feeling about NICE guideline review
Need Help Recovering from Hurricane Irma & Harvey?
Let us know if you need help recovering from Hurricanes Harvey & Irma. We are planning to share the
Invite Congress to experience UNREST film and VR!
#MEAction is teaming up with the Time for Unrest campaign and Solve ME/CFS Initiative to bring two new exciting
Why Society Shuns People with ME
Listen to the audio version recorded by Anna Ruddock @annalouruddock Cindy Downey wrote this editorial as a response to