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Announcing the Art Picks for Postcards to Doctors
#MEAction is launching an initiative that will allow you to help educate your local clinicians, called Postcards to Doctors!
UK Teenager with Severe ME Threatened with Forced Institutionalization
The ME community is rallying around 17-year-old Jehan “Gigi” who has been hospitalized with severe myalgic encephalomyelitis (ME) in
#MEAction Seeks Applicants for Blue Ribbon Fellowship at Bateman Horne Center
Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical
Announcing #MEAction’s Blue Ribbon Fellow: Investigating the Role of Folate in ME
The #MEAction Blue Ribbon Fellowship is excited to announce that medical student, Christopher Larrimore of Nova Southeastern University, has
Australia’s ME/CFS Advisory Committee Releases Final Report
The final report from Australia’s National Health and Medical Research Council’s (NHMRC’s) ME/CFS Advisory Committee, established in late 2017, has been released. The committee was tasked with advising NHMRC’s CEO on current needs for research and clinical guidance for ME/CFS in Australia.
Enrolling: Naviaux Lab Metabolomics Study
Who: Looking for adult women with ME, Lyme’s Disease (post-treatment), or healthy controls that are currently living in Southern
Sign a petition to ask the EU for funding for biomedical research
Hello EU! The best way to combat a hopeless situation is to act! Please help us by signing a
Aid Without Asking: How to Support Someone with ME
The love of my life battles ME/CFS. It’s a disease that my father has also struggled with since I
Photographer Seeking Bay Area Subjects to Tell Story of ME
A Bay area-based photographer is seeking people with myalgic encephalomyelitis (ME) who are willing to share their stories and to be
Australian Teenager with Severe ME Describes Forced Psychiatric Treatment
Originally published on ME Australia. by Sam* Sam (*not her real name) is a teenager living in Australia’s largest
The ME/CFS Harvard Collaboration Holds its First Symposium
By Christopher Armstrong, PhD, OMF Science Liaison When the Harvard ME/CFS Collaborative at Harvard Affiliated Hospitals was initiated last
#MEAction Launches its U.S. State Chapter Initiative
We’re so excited to announce we’re growing our community’s impact through the expansion of #MEAction USA’s formal State Chapters.
Volunteers: the bedrock of every #MEAction Scotland campaign
Volunteers are at the heart of everything #MEAction Scotland does. We are always looking for more people to help
I’m angry, but I’m not alone.
I’m angry, but I’m not alone. Hi, my name is Ben HsuBorger, Director of Global Community and Campaigns for
Why the Fight is Personal
I am so honored to work with the #MEAction community on a daily basis. Our organization is fighting hard
Hannah Bowlus: Fighting Inequality, Finding Power in Community
I’m Hannah Bowlus and I’m the administrative assistant at #MEAction. I take care of basic things like mailing
Congressman Jack Bergman becomes Champion for ME!
Up with the Marines! We are so pleased that Congressman Jack Bergman (R, MI-1), a former Marine general, has
Introducing #MEAction’s 2019 ME Research Summary
We are thrilled to announce the release of our 2019 research summary reviewing the most current and important research into
Call for Artists! Sending postcards to doctors!
PLEASE NOTE: The Unrest CME has now expired. If you have postcards remaining, please direct your providers to this
Jaime Seltzer: Science Makes the Impact
People with ME are an incredibly science-literate patient population, even if that isn’t by choice: it’s the gaps in
As I Age with ME
By Marianne Granger In my forties I was moving forward fulfilling my drive to be a community organizer/communicator/coach (my
Erin Roediger: Igniting a Fire for ME
As the U.S. Advocacy Manager for #MEAction, I have the great pleasure of connecting fully to my life’s purpose:
Action Alert: Support A Funding Increase for ME!
We need YOU to contact your Senators. Your voice makes all the difference. Our champion, Senator Markey, led two
We need Effective, Strategic, and Respectful Engagement from CDC
On June 3rd the CDC held its latest MECFS Stakeholder Engagement and Communication (SEC) Webinar/Conference Call with the ME
Why #MEAction is Taking Action towards the CDC on Two Fronts
#MEAction has announced two CDC-related advocacy actions today and yesterday. We are asking you to contact your Senators to
Meet the #MEAction Staff: Espe Moreno
I am delighted to be part of the series in which you are getting to know the #MEAction staff!
Meet the Staff: Holly Latham
It is an honor to volunteer and work for #MEAction. #MEAction came to me at a time in my
Hundreds gather for #MillionsMissing Glasgow
#MillionsMissing Glasgow on 12 May, 2019, was a huge success, and took place in glorious sunshine which is fairly
Thank The Senate Resolution Co-Sponsors!
Thank The Senate Resolution Co-Sponsors! This past weekend we celebrated the passing of the bipartisan Senate Resolution, S.Res. 225,
ME Friendly Forms of Escapism, and How Best to Undertake Them
Jack Croxall is an author, scriptwriter and blogger living in Nottinghamshire, UK. He fights ME both in life and
Meet the #MEAction Staff: Laurie Jones
Meet the #MEAction Staff! Over the next couple of weeks, the staff at #MEAction will be sharing their experiences
Historic Congressional Resolution Passes for ME!
Senate Resolution passed! This is a great victory for all people with ME.
Enrolling: EDS Genetics Study
What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have
A Letter from Jennifer Brea about her ME Remission
Listen to the article: #MEAction co-founder, Jennifer Brea, wrote this letter to the community about her remission of
Read #MEAction’s Request for Information response to the NIH
The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI,
We are building a movement at #MEAction UK. Join us!
#MillionsMissing – organised by #MEAction – has been such a successful campaign this year, and we thank everyone in
We did it! This is what the #MillionsMissing Look Like.
It has been a big week, with over 100 public and virtual events happening across the world! We are
Enrolling: Stony Brook University ANS Study
Who: Researchers at Stony Brook University– funded by the National Institue of Health What: The goal of this study is
#MillionsMissing from ME: 2019 Stories
We asked you, the #MillionsMissing from ME to tell us your stories. We are grateful for all that you’ve
Remembering the Forgotten: How AMMES Lessens Isolation and Neglect
Erica Verrillo is the president of the American ME and CFS Society, a 501(c)(3) nonprofit. May is the month
Help Simmaron Research AMPlify Therapies for ME!!
Simmaron Research is conducting a one-of-a-kind study to analyze data from ME/CFS patients who respond to treatments like Ampligen®, IVIG, and cidofovir, and we need your help funding this data analysis! Our goal is to publish peer-reviewed data to stimulate treatment trials and inform rigorous trial design ASAP!
Twitch Gaming Show Fundraises for #MEAction!
Rat Queens, a show on the popular Twitch channel, HyperRPG, is hosting a fundraiser for #MEAction this Wednesday, May 8th
South Carolina Raises Awareness about ME
My name is Robert Jacobs, MD and I am a retired Physician and caregiver for my wife who has
Urgent – Contact Your Senators Now to Co-sponsor the ME/CFS Awareness Day Resolution
***UPDATE: THIS ACTION IS NOW OVER*** Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness
#MillionsMissing from ME: Your Stories
Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. We received heart felt
Career and Loss for People with ME
Australia: Sign the Petition to Provide Disability Services to People with ME!
Australians with ME/CFS are routinely rejected from the country’s National Disability Insurance Scheme (NDIS), because the Australian government doesn’t consider ME/CFS to be a permanent condition for most living with the illness. Sign this petition to support Aussies with ME/CFS and demand policy change!
The Unique Challenge of Aging with M.E.
Aging can be a challenging time for anyone but people with the debilitating, chronic disease of myalgic encephalomyelitis (ME) often
Parents and Children Missing from their Lives due to M.E.
Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. Parents with ME are
South Carolina Raises Awareness About ME
May has been declared Myalgic Encephalomyelitis (ME) Awareness Month and May 12, 2019 as ME Awareness Day pursuant to a City of Charleston, South Carolina Proclamation
#MEAction Drafts Response to NIH’s Request for Information
NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a Request
Q&A with #MillionsMissing UK Organisers
On Thursday 18th April, #MEAction UK held a conference call with organisers of #MillionsMissing event past and present from
How to Protest Virtually with the #MillionsMissing
Join the protest virtually during #MillionsMissing – May 5th to May 12th Use the hashtag: #MillionsMissing Start sharing photos
$1M Biobank Project for Australia
A charitable trust, the Mason Foundation, is asking researchers to submit proposals for a biobank and patient registry as