United States Archives

A Job for a Lone Congress Member – Speak Up for ME/CFS, a Forgotten Disease

June 4, 2015 No Comments

Contact your Congressional Delegation – Share Llewellyn King’s article and ask them to speak up for ME/CFS Please find your Congressional delegation by typing your zip code, then copy and paste the following text into the contact forms. [button_color url=”http://www.contactingthecongress.org” content=”Contact your Congressional Delegation” target=””] Attention: Legislative Assistant for Health Please read the following article

NIH Telebriefing: Advancing the Research on ME/CFS

June 3, 2015 No Comments

The NIH Pathways to Prevention workshop panel will hold a press telebriefing to discuss their findings and answer questions from members of the media.

Occupy the US Department of Justice

May 29, 2015 No Comments

Groups of chronically disabled patients, victims of medical abuse, will be assembling for a peaceful but passionate protest on the steps of USDOJ, 950 Pennsylvania Avenue NW, Washington, DC 20530, from June 1 until July 4.

Take Action for Equal Funding at NIH

May 15, 2015 No Comments

Join hundreds of patients in emailing Secretary of Health Burwell and NIH Director Collins for Equal Funding for ME/CFS!

Help DePaul Researchers Learn About Post-Exertional Malaise

May 14, 2015 No Comments

We are conducting a research study because we are trying to learn more about what occurs before and during post-exertional malaise for individuals with Myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS), as well as how these individuals define the term post-exertional malaise. We are asking you to be in the research because you have a diagnosis of ME or CFS, speak English, and are 18 years of age or older. If you agree to be in this study, you will be asked to complete a survey. The survey will include questions about your post-exertional malaise experiences related to your ME or CFS. We will also collect some personal and demographic information about you, such as age, gender, race, marital status, income, level of schooling, disability information, and work status. The full survey can be completed online. If there is a question you do not want to answer, you may skip it.

More NIH Funding Needed for ME/CFS Research!

May 13, 2015 No Comments

According to the recent Institute of Medicine report, up to 2.5 million Americans have chronic fatigue syndrome (ME/CFS). Patients with ME/CFS are more functionally impaired than those with other disabling illnesses, including congestive heart failure, multiple sclerosis, and end-stage renal disease. The NIH funds ME/CFS at $5 million per year, and that amount is estimated by

The $10 Challenge For Columbia CII ME/CFS Research

May 10, 2015 No Comments

The Microbe Discovery Project began as a patient-driven crowdfund to raise funds for world-class researchers Dr Ian Lipkin and Dr Mady Hornig at Columbia University’s Center for Infection and Immunity (CII), New York. Research into ME/Chronic Fatigue Syndrome is sorely needed and there is a paucity of research into the illness. Patients raised a whopping

Help DePaul researchers learn more about ME related mortality

April 19, 2015 No Comments

DePaul University’s Center for Community Research (under the leadership of Dr. Leonard Jason) is currently recruiting respondents for a study on myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) mortality.

Retire this stock photo

April 12, 2015 3 Comments

Tired of reading news about ME and seeing images of people slumped at their desks or yawning? Submit your REAL photo to the flickr group. Help us create a pool of stock photos that authentically portray the experience of living with ME. The photos will be made available to newspapers and magazines. [button_dark url=”https://www.flickr.com/groups/meaction/pool/” content=”Submit your stock photos!”

Category: United States