United States Archives

#MEAction & Mayo ME/CFS Algorithm is Live!

April 26, 2023 23 Comments

Together, we built a new ME/CFS diagnostic & treatment algorithm for Mayo Clinic– including info on severe ME.

Young woman sits on floor at edge of bed looking distraught with head in hand

ME & Long COVID patients need telemedicine prescribing flexibility

March 31, 2023 3 Comments

DEA should amend its proposed rule to ensure access to care

NIH Must Not Overlook Evidence of Exercise Harm

March 22, 2023 4 Comments

Long COVID Exercise study must address safety, efficacy concerns.

Text “Exercise can worsen Long Covid.” A person is falling through the air; their face is blurred and legs and arms are reaching upward. The background is a cracked glass screen.

MEAction questions Long COVID exercise study’s safety, efficacy

March 6, 2023 2 Comments

Calls for immediate public release of RECOVER’s clinical trial design

#MEAction Colorado Works With Governor’s Office to Create A New Senior Policy Advisor Role on Long COVID and Post Viral Infection Planning–Leading to Statewide Report on Long COVID

February 24, 2023 No Comments

#MEAction Colorado’s first legislative effort in Colorado began with an ME/CFS day declaration in the Colorado Legislature on February 25, 2020. Representative Alex Valdez read into the legislative record a proclamation about the presence of and deleterious effects of ME in Colorado. This effort was relatively easy to accomplish and consisted of finding a representative

Let’s Look at #MEAction’s Top Hits from 2022

January 9, 2023 No Comments

As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing

ME/CFS Neglect Kills. Act Up. Fight Back. #MEAction. Red tinted image with protestors laying on grass in front of White House with grave stones. Protestor raises one clenched fist above head.

My Truth, Our Trauma, & A Call to Keep Fighting

December 7, 2022 No Comments

Reflections from the World AIDS Day White House Protest

Large bold text, on an angle reads: Join us for World AIDS Day to End Pandemic Nightmares. Dec 1 12 PM EST outside the White House and online everywhere. Below, a person of color in a face mask with a sign reading "HIV, Long COVID and ME/CFS, COVID-19, Ebola, cholera, monkeypox, TB, and more." Next to a white person in a face mask holding a sign reading "End COVID Everywhere." Below are the logos of organizational co-sponsors: Health GAP, Universities for Access to Essential Medicines, ACT UP New York, ACT UP Philadelphia, Long COVID Justice, Black and Latinx Community Control of Health, MEAction, The Peoples Vaccine, CPD Action, Spaces in Action, Strategies for High Impact, Access is Global.

On World AIDS Day, We’re Taking Action at the White House

November 23, 2022 No Comments

White House Must Confront Global Health Nightmare of Colliding Pandemics

Text across top of image reads: "Experts in infection associated chronic illness" with "WE WANT YOU!" bolded below it. Hand with finger pointed out at viewer. "Apply now" buttons to the left and right with mouse cursor clicking on them.

Infection-associated chronic disease experts needed at ARPA-H

November 22, 2022 1 Comment

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open

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#MEAction Response to NY Magazine’s Egregious Article on ME and Long COVID

November 10, 2022 5 Comments

#MEAction has sent the following email to editors at New York Magazine to request it remove its fallacious article about Long COVID and ME.

Category: United States