United States Archives

#MEAction Advocates will Speak at Stanford MEDx Conference this Weekend

September 21, 2019 1 Comment

#MEAction advocate, Terri Wilder, and #MEAction board member, Ryan Prior, are co-presenting at the Stanford MEDx conference this weekend about how #MEAction empowers the myalgic encephalomyelitis (ME) community through technology. Terri and Ryan will discuss the history of #MEAction, its founders, its reason for being, its social justice philosophy, its policy goals, the PACE trial,

NIH Working Group Releases Report on ME

September 4, 2019 1 Comment

Yesterday, the U.S. National Institutes of Health (NIH) published a report of the NANDS Council Working Group for ME/CFS research. #MEAction’s NIH Committee (comprised of staff and volunteers) will take time to thoroughly review this report’s recommendations and issue a full response to the NIH. Read the NANDS report. In the meantime, we want to share a

#MEAction Sends Letter to CDC Calling for Transparency and Progress

August 27, 2019 No Comments

The U.S. Center for Disease Control and Prevention (CDC) has initiated various projects focused on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS), but there has been very little transparency or engagement with the patient community about the CDC’s overall plans, the approaches being used, or the status of the projects underway. Further, many of the

California Activists Fight for Centers of Excellence for ME

August 27, 2019 No Comments

California advocates for myalgic encephalomyelitis (ME) are fighting for the state to institute a statewide Centers of Excellence program that would train ME specialists, provide state-of-the-art treatment for people with ME, and undertake advanced research. Activists across the state have already met with 24 state legislators to discuss this initiative. Activist and parent of a

U.S School Nurses, Teachers & Counselors can now take Continuing Education Course about Pediatric ME/CFS

August 16, 2019 No Comments

School nurses, counselors, social workers or teachers in any U.S. state can now earn earn 3.25 Continuing Education credits (CNE) for completing a course on pediatric myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The course is titled, ““Why Can’t This Child Get to Class? Learn How ME/CFS Keeps Youth from Attending School.” The course features Dr, Peter Rowe,

#MEAction Responds to Attacks on ME Community in The Guardian and Psychology Today

August 1, 2019 4 Comments

Listen to the article: Part 1: Part 2: In the past two weeks, The Guardian/The Observer and Psychology Today US have published articles portraying the myalgic encephalomyelitis (ME) community as an angry, misguided mob using social media to denigrate scientific research. Both articles focus on the criticism that Dr. Michael Sharpe, one of the

#MEAction Seeks Applicants for Blue Ribbon Fellowship at Bateman Horne Center

July 24, 2019 2 Comments

Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical students, med-peds, internal medicine and family practice residents. We are delighted to announce the #MEAction Blue Ribbon fellowship at the Bateman Horne Center (BHC) with Dr. Lucinda Bateman. The clerkship/rotation will consist of one month spent

#MEAction Launches its U.S. State Chapter Initiative

June 27, 2019 No Comments

We’re so excited to announce we’re growing our community’s impact through the expansion of #MEAction USA’s formal State Chapters. #MEAction USA’s State Chapters build local capacity around volunteer engagement, congressional outreach, local and state advocacy, and medical education, and support awareness raising efforts for ME. State chapters also act as laboratories to incubate new ideas

Hannah Bowlus: Fighting Inequality, Finding Power in Community

June 15, 2019 No Comments

I’m Hannah Bowlus and I’m the administrative assistant at #MEAction. I take care of basic things like mailing t-shirts, archiving and scheduling calls. I talk with a lot of you. The more I get to know this community the more urgent and vital our work feels. I get to see everything that’s going on

Congressman Jack Bergman becomes Champion for ME!

June 14, 2019 2 Comments

Up with the Marines! We are so pleased that Congressman Jack Bergman (R, MI-1), a former Marine general, has become a champion for people with myalgic encephalomyelitis (ME). Michigan advocates led by Lori Chapo-Kroger, RN, president of Pandora Org, and supported by the #MEAction Congressional team, did a video conference with Rep. Bergman several months

Category: United States