It has been been an exciting time for the myalgic encephalomyelitis (ME) community these past few weeks. We are in awe of the sacrifices and hard work people with ME and their allies have made to make their voices heard. #MEAction and the Solve ME/CFS Initiative organized the largest Advocacy Day ever with more than 200
***UPDATE: THIS ACTION IS NOW OVER*** ADVOCACY WEEK LOCAL ACTIONS As many of you know, Advocacy day is April 3rd in DC. Activists will be traveling from around the United States to have meetings with their elected officials to demand recognition and action for people with ME. No matter if you are in DC
The Workwell Foundation issued the press release below about its meta-analysis of 20 years of studies that shows “overwhelming evidence” of chronotropic incompetence in people with ME/CFS, which contributes to activity intolerance in people with myalgic encephalomyelitis (ME). A normal response to exercise is an increase in heart rate. Failure of the heart to keep pace with an
On March 13, Reuters published an article, “Special Report: Online activists are silencing us, scientists say“. Reuters used their platform to promote discredited, pseudoscientific treatments and to frame people with ME as violent activists. The article was also picked up in the New York Post, who re-published the content uncritically. #MEAction is urging the ME
‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We ask them about their current research and get to meet the people working to improve our health. The series introduces early career researchers through to interviewing scientists and clinicians who have been working on the problems for decades.
You still have one week left to register for Advocacy Day 2019 in Washington, DC! You may be trying to decide whether or not you should come (and, please, put your health first) or send a loved one in your place, so we thought we would ask some people who have attended about their perspective on Advocacy
Years ago, Dr. Bell made the observation that many people currently living in cars most likely had chronic fatigue syndrome (CFS). (The acronym myalgic encephalomyelitis (ME/CFS) was not used at that time.) Under any circumstances, the threat of homelessness causes despair, but among people with ME/CFS the prospect of losing a home is terrifying. Seriously
Follow Rivka Solomon on Twitter: @RivkaTweets “Now that’s the kind of event that gives hope. Real hope. Tangible, actionable hope. It’s infuriating that the standard of “care” for #Millions Missing is mostly built on disinformation. This kind of event is how we change this mad injustice.” – @RichardVallee on Twitter Every now and then something happens
#MEAction is currently accepting applications from medical students and practicing medical professionals to attend the National Institutes of Health meeting on myalgic encephalomyelitis (ME) research on April 4th-5th, 2019 in Bethesda, MD. The application is now due at 5 p.m. EST on Tuesday, February 26th. The goal of the meeting is to showcase high-quality studies to better understand the state of the science
This holiday season, give the gift of support and love through a donation to #MEAction. Your donations go to growing the reach of ME so that more people know and want to support. Donations also go to our various initiatives including: educating physicians, inspiring new scientists to the field, connecting pwME and caregivers through social
