Category: Severe ME

The Virtual Choir is Back — Submissions now Open!

We are excited to announce that submissions are now open to join our next virtual choir! We have so enjoyed sharing your lovely voices with the world, so we had to bring it back for this year’s #MillionsMissing MAY. This year, the song we will be singing is True Colors as performed by Anna Kendrick

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Facets of ME: Cognitive Dysfunction

Welcome to our second Facets of ME! This is an educational feature in which we choose one aspect of ME to dive into and explore more in-depth once a month. Our goal is to keep it understandable while still providing a great overview and links to even more detailed information.  The facet of ME that

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Facets of ME

We are excited to launch an all-new educational feature – Facets of ME! We will be diving into the multiple facets of ME/CFS including symptoms, comorbidities, practical tips, and more. Our goal is to take the first Friday of each month and delve into one particular facet of ME in a way that is easy

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A sign that says pause against the backdrop of a blue sky. Let us pause together before Severe ME Day.

A Pause Before Severe ME Day 2021

Our community is fighting every day to bring hope, health and justice to people with myalgic encephalomyelitis (ME). In August we especially take time to honor the 25 percent living with the most severe form of this disease and remember those who have died from ME. August 8th marks the Severe Myalgic Encephalomyelitis (ME) Day

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Severe ME Artists Project

#MEAction is excited to announce our Severe ME Artists Project which will feature work from those within the severe ME community in honor of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their artwork (whether it be writing, photography, drawing, singing, or any other medium that illustrates their talents) with multiple ways to participate based on a person’s energy levels.

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TWO WEEKS TO SEND IN YOUR RESEARCH IDEAS

Help prioritise ME/CFS research by filling in this survey A major UK project is looking for your input. They want to know what research you think should be funded in the future, and the deadline for adding your ideas is fast approaching. Your responses must be in by Monday 5th July 2021. Find out more

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Investigating the impact of Covid-19 on ME – Survey

Please help #MEAction UK and #MEAction Scotland by taking part in this survey to find out the effect that Covid-19 has on people with ME. Take the survey We are working in collaboration with Action for ME to gather evidence on the impact of Covid-19 on our community. We have heard many stories from people

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