Psychology Today fails in its duty of care to people with ME
October 2, 2020
9 Comments
#MEAction UK has written to the online publication Psychology Today asking for the retraction of a stigmatising blog post.
Category: Scotland
#MEAction Scotland Petition: Achievements and Agenda-setting
September 30, 2020
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#MEAction Scotland submitted their petition to the Scottish Parliament in May 2018. In June, Emma Shorter, #MEAction Scotland’s volunteer leading the petition, made a powerful speech to the Petitions Committee describing the desperate need for support for people with ME in Scotland.
TRAINING OPPORTUNITY TO JOIN OUR UK AND SCOTLAND SOCIAL MEDIA TEAMS
September 3, 2020
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Being able to communicate information effectively and efficiently is key to much of the work #MEAction does. We are looking for new volunteers to join us. If you’d like to help us reach and engage our target audiences, we’d welcome you in our social media teams. Don’t worry if you have no previous experience –
GOOD MORNING BRITAIN GETS IT WRONG ON POST-COVID TREATMENT AND ME
August 21, 2020
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#MEAction UK has written a letter of complaint to Good Morning Britain in response to recent statements from Dr Hilary Jones on the programme, regarding the rehabilitation of long COVID patients. In his interview with Kate Garraway yesterday, Dr Jones recommended graded exercise as a strategy for those recovering from COVID-19. There is now a
OPEN LETTER DEMANDS ACTION TO SAFEGUARD PEOPLE WITH ME, NOT JUST POST-COVID PATIENTS
August 6, 2020
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#MEAction UK have once again written to the National Institute for Health and Care Excellence (NICE) imploring them to act to safeguard people with ME from harm, after their recent statement cautioning that the recommendation of graded exercise therapy should not be assumed to apply to patients with post-COVID symptoms. Development and publication of the new ME/CFS
£3.2million granted for largest ME/CFS DNA study ever
June 23, 2020
1 Comment
Funding for the world’s largest genetic study into myalgic encephalomyelitis (ME), led by a partnership of patients and scientists, has been announced. Thanks to £3.2 million funding, awarded jointly by the Medical Research Council and National Institute for Health Research, work can begin on DecodeME, the ME/CFS DNA study that hopes to reveal the tiny differences in a person’s DNA that may affect their risk of developing ME/CFS, and the underlying causes of the condition.
New ME education module available for healthcare professionals
June 3, 2020
3 Comments
A new education module designed to teach healthcare professionals about ME has been released. Send the new module to your GP, using our email template. The module was created by the CMRC Medical Education group, led by Dr Nina Muirhead, and is available for free online. The Group includes patients, professionals, charities and organisations such
Another No from NICE – Take ME Seriously
February 5, 2020
3 Comments
As publication of new ME guidelines are delayed, NICE once again refuse to take action to mitigate the harmful recommendations that still stand in the existing guideline. Join us as we send them a giant card and tweet them so that they see the damage their guidelines have caused. Read more below and take action.
#MEAction Scotland’s Petition: Progress Continues
January 17, 2020
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On Thursday 19th December, 2019 the Scottish Parliament’s Public Petitions Committee met to continue its consideration of #MEAction Scotland’s petition, PE1690, which calls for a review of treatment of people with myalgic encephalomyelitis (ME) in Scotland. Appearing before the committee to give evidence were Jeane Freeman, the Scottish Government’s Cabinet Secretary for Health and Sport,
NICE drag their feet on stopping the harm caused by GET and CBT
August 27, 2019
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As part of our ongoing advocacy work, #MEAction UK has been campaigning for the National Institute for Clinical Excellence (NICE) to update the current ME guidelines. Updated ME/CFS guidelines are due to be published in October 2020. However in the meantime, the existing guidelines published in August 2007 that recommend Cognitive Behavioral Therapy (CBT) and