Category: Scotland

A photo of a blue background with a marker pen drawing of an arrow hitting a target surrounded by the words strategy, plans and goals. A red marker pen is in the bottom right corner and the ME Action Scotland logo is at the top.

#MEAction Scotland publishes refreshed strategic priorities

#MEAction Scotland has refreshed and updated its strategic priorities for the period 2024-2026, in anticipation of the expected Scottish Parliament elections in May 2026. We continue to work towards our vision of a Scotland where health and social care professionals, politicians and policy makers, and the general public understand and support people with ME and

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Questions to Ask Prospective MPs About ME/CFS

In the next few weeks, candidates will be knocking on doors seeking votes for the upcoming UK Election. It’s important that candidates from all parties are made aware of the challenges facing people with ME and Long Covid. It can be a little daunting to be unprepared so here are some questions you might want

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A stock photo with a close up of some papers on a table, which have multi-coloured graphs and charts on them. A hand is holding a clear pen with a blue grip to the paper.

#MEAction UK and Scotland update prevalence figures based on new data

Both the UK and Scotland branches of #MEAction will start using updated figures for the prevalence of ME, based on a recent US survey. Unfortunately, all prevalence estimates for ME are of limited accuracy. This is due to a range of factors including, but not limited to, uncertainty around diagnosis, lack of confidence among healthcare

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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Services in Scotland: Findings from an analysis of surveys issued to NHS Boards in Autumn 2022.' A red banner is at the bottom of the photo with the ME Action Scotland logo and text which says, 'ME Action Scotland response to the Health Board survey about ME.’

#MEAction Scotland response to the survey of Health Boards

On 16th May 2023, the Scottish Government published the findings from an analysis of surveys issued to NHS Health Boards to understand delivery of ME services and implementation of the updated NICE guideline.  #MEAction Scotland welcomes the survey activity and report, as it provides useful evidence about the current issues people with ME are facing

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Group of ME Action volunteers standing outside the Scottish Parliament at Millions Missing 2022, wearing red ME Action t-shirts and smiling at the camera. Two in the middle are holding a large sign which says Millions Missing spaced in between outlines of people.

#MEAction Scotland’s plans for #MillionsMissing

This year, #MEAction Scotland will be doing smaller, more focused activities for #MillionsMissing than previous years, and we are asking the community to take part in the digital campaign, rather than joining us in person. We also need people to email their MSPs, which there is information about below. Volunteers are planning two main activities

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2023 #MillionsMissing in white and black on a red background. The words, Join the UK and Scotland Digital Campaign in black marker font towards the bottom. The #MEAction UK and Scotland logos are the bottom left and right hand corners.

Join the UK and Scotland’s digital campaign this #MillionsMissing

May is nearly here and that means so is ME Awareness Week and #MillionsMissing! This year, #MEAction Scotland and #MEAction UK are returning to the central theme of #MillionsMissing – drawing attention to the people missing from their previous lives and wider society because of ME. Most people don’t understand how widespread ME is, or

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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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A screenshot of Sue Webber MSP opening the debate on ME in the Scottish Parliament. Sue is a white woman with blonde hair. She’s wearing a flowery blouse, a dark jacket and a chunky necklace. The desks of the Debating Chamber are around her, and some other MSPs can be partially seen. At the bottom of the image, the words The Scottish Parliament debate on ME are written in black over a red box. The #MEAction Scotland logo is at the bottom, right hand corner.

The Scottish Parliament debate on ME

Article summary: Sue Webber MSP’s Member’s Business debate took place in the Scottish Parliament on Thursday 2nd February, 2023. It was a successful debate with a good turnout of MSPs from across all parties, and it had to be extended due to the amount of MSPs who wanted to speak. There were calls on the

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A photo from Millions Missing Scotland of a group of 20 protestors outside the Scottish Parliament. They’re looking serious and holding signs that say Millions Missing, and a pledge signed by MSPs. Many are wearing red ME Action t-shirts. A yellow icon of a person is overlaid next to them with an arrow pointing to it and the words ‘Could it be your MSP?’ A red banner along the bottom says ‘Share your story and ask your MSPs to stand up for people with ME.’

Ask your MSPs to stand up for people with ME

Sue Webber MSP’s motion about ME will be debated in the Scottish Parliament on Thursday 2nd February – and your MSPs should be there! The motion calls on the Scottish Parliament to recognise the outcomes and recommendations of the stakeholder report on ME, including education of healthcare professionals and development of specialist services. We’re pleased

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