Science Archives

Category: Science

Research: supporting advocacy orgs yields huge payoffs

November 27, 2018 6 Comments

This Giving Tuesday, I’ve got some good science to show why you should donate to #MEAction and other advocacy organizations! The study Disease Politics and Medical Research Funding: Three Ways Advocacy Shapes Policy sets out to discuss single-disease interest groups and their influence on US politics: “This article explores their effects on federal medical research priority-setting.

Sept & Oct — Research Roundup

November 15, 2018 1 Comment

The end of September was a whirlwind! Between the CDC’s website work, the CDC’s awarding of a sole contract, the planning sessions for the NIH meeting, and the Stanford symposium, there wasn’t much time to devote to breaking down the science. If you’d like to see a quick run-down of what’s been going on lately

Enrolling: Online Pediatric Research Survey

November 5, 2018 2 Comments

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of the symptoms and experiences of youth with ME/CFS by conducting a research survey. Who: The Center for Community Research at DePaul University When: Ongoing What: We would like to invite children/adolescents (ages 5-17) with myalgic

UPDATE: Cochrane Has NOT Removed "Exercise Therapy for CFS" Review

October 29, 2018 3 Comments

It appears that Cochrane will NOT temporarily remove a review from its database that claims exercise therapy is effective for chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME), as a report in Reuters had indicated last week. Instead, Cochrane editors have added an editor’s note (that is all but invisible unless you really go searching for it)

Cochrane Temporarily Removes Review of "Exercise Therapy for CFS"

October 27, 2018 4 Comments

Cochrane has temporarily removed a review from its database that claims exercise therapy is effective for chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME). Cochrane is a database of medical reviews and meta-analyses, which medical providers around the world rely on for diagnosing and treating disease. Their review, Exercise Therapy for Chronic Fatigue Syndrome, covers

UK: More than 250 GPs Attended ME Workshop at the RCGP Conference

October 18, 2018 1 Comment

A week after the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow on the 4th – 6th October, it seems appropriate to reflect on the impact of the conference on educating GPs about myalgic encephalomyelitis (ME). The RCGP Conference is the must-attend event of the year for GPs and practice team colleagues, showcasing

Enrolling: White Matter Evaluation with Stanford University

October 12, 2018 5 Comments

Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within the right hemisphere. It is crucial to further the research involved with these findings as they may lead to more definitive diagnoses of ME. Who: Dr. Montoya and Dr. Zeineh at the Stanford School of Medicine When: Ongoing What:

Emerge Australia Releases Report on National Survey of ME Patients

October 12, 2018 1 Comment

Emerge Australia has released a report on the findings of a survey of more than 600 Australians with ME/CFS. The National Survey of the Health and Wellbeing of People with ME/CFS was carried out in conjunction with ASDF Research, and highlights the need for greater understanding of ME/CFS in Australia.

POTS and Beyond Conference 2018

October 9, 2018 3 Comments

The POTS and Beyond conference held in Salt Lake City this past weekend brought together experts in the field to educate physicians and patients on what is known about autonomic dysfunction. The neurology department of the University of Utah School of Medicine partnered with Dysautonomia International and Granger Medical to create this two-day event. The

Enrolling: Stanford Neuroinflammation Study

October 5, 2018 13 Comments

This study is interested in ME/CFS patients who would classify themselves in the severe category (mostly bedbound, could be housebound). Dr. Montoya and Dr. Michelle James, a neuroradiologist at Stanford University, aim to investigate the inflammatory process in the brain of ME/CFS patients. They believe that this study could lead to improvements in our understanding of the disease