Science Archives

Announcing #MEAction’s Blue Ribbon Fellow: Investigating the Role of Folate in ME

July 24, 2019 No Comments

The #MEAction Blue Ribbon Fellowship is excited to announce that medical student, Christopher Larrimore of Nova Southeastern University, has been selected as one of our fall fellows to support his continued research into myalgic encephalomyelitis (ME). The #MEAction Blue Ribbon Fellowship, now under the stewardship of #MEAction, supports the work of medical students to undertake

Enrolling: Naviaux Lab Metabolomics Study

July 21, 2019 3 Comments

Who: Looking for adult women with ME, Lyme’s Disease (post-treatment), or healthy controls that are currently living in Southern California or live within two hours of San Diego. Note that you will need to avoid food for three hours prior to your blood draw. What: Participants for the new Naviaux Lab Metabolomics Study are needed!

The ME/CFS Harvard Collaboration Holds its First Symposium

June 28, 2019 No Comments

By Christopher Armstrong, PhD, OMF Science Liaison When the Harvard ME/CFS Collaborative at Harvard Affiliated Hospitals was initiated last year with funds from Open Medicine Foundation (OMF), it was considered a commitment to co-leaders, Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, PhD, to begin a research operation in one of the world’s most respected academic institutions. The Harvard

Introducing #MEAction’s 2019 ME Research Summary

June 12, 2019 No Comments

We are thrilled to announce the release of our 2019 research summary reviewing the most current and important research into myalgic encephalomyelitis (ME) and ME/CFS of the past 10 years. Our research summary provides essential stakeholders with access to a compiled, digestible resource that can help them excel in their respective areas of expertise, including clinicians,

Enrolling: EDS Genetics Study

May 22, 2019 No Comments

What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have a range of similarities and overlap. EDS is a connective tissue disorder in which musculoskeletal pain, joint pain/hypermobility, and fragile skin are considered common manifestations. Who: 1000 individuals with Hypermobile EDS as well as their family

Read #MEAction’s Request for Information response to the NIH

May 21, 2019 No Comments

The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a Request for Information, from the ME community on how to advance research for myalgic encephalomyelitis. With only a few weeks’ turn-around, the #MEAction NIH working group produced a compelling response based on information conveyed in

Enrolling: Stony Brook University ANS Study

May 14, 2019 No Comments

Who: Researchers at Stony Brook University– funded by the National Institue of Health What: The goal of this study is to use data obtained from participants to compare the relationships between fatigue, physical activities and autonomic function (heart rate variability). Individuals with ME/CFS as well as healthy controls are needed. Those who participate over the entire

$1M Biobank Project for Australia

April 15, 2019 No Comments

A charitable trust, the Mason Foundation, is asking researchers to submit proposals for a biobank and patient registry as well as a research project that uses the data and specimens. The trust will grant $200,000 a year for five years for the biobank project, $1 million in total. Applications are now open and close on 30 April 2019.

#MEAction Medical Travel Scholarship Award Winners

April 4, 2019 No Comments

#MEAction Medical Travel Scholarship Because of the generous donation from a private family foundation, #MEAction has been able to provide travel scholarships to medical practitioners and medical students to attend the National Institutes of Health conference on ME this Thursday and Friday. The goal of the meeting is to showcase high-quality studies to

CBT and GET survey results published by Forward-ME Group

April 3, 2019 No Comments

In January 2019, a survey investigating the impact of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for people with ME, CFS or PVFS diagnoses in the UK was made available online. It was intended to provide up-to-date data on the impact these therapies have had on people who have been offered or received

Category: Science