Science Archives

Category: Science

Patients and professor publish biomedical ME/CFS paper

May 1, 2016 4 Comments

Professor Jonathan Edwards, along with several ME/CFS patients and a carer with scientific backgrounds have co-authored a peer-reviewed editorial on the disease that appears in the latest issue of the journal Fatigue: Biomedicine, Health & Behavior. The article is titled, The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem. The paper has gained

Transcript: Solve ME/CFS Interviews Dr. Avi Nath

April 24, 2016 1 Comment

Dr. Zaher Nahle from the Solve ME/CFS Initiative recently interviewed Dr. Avi Nath, who is leading the intramural study on ME/CFS at the NIH. The intramural study on ME/CFS at the NIH has raised some concerns in the ME/CFS community: the appointment of Dr. Walitt, who has made statements implying that he views ME/CFS as

Meet the Scientists: Dr Sarah Knight

April 13, 2016 1 Comment

Meet the Scientists: Meet Dr Sarah Knight, looking at brain scans for neurological markers in children and adolescents with ME/CFS (Canadian Consensus Criteria).

Communications with NIH

April 13, 2016 No Comments

We wanted to be clear about our communications with NIH since there has been some conflicting information. The founders of #MEAction have never met with Dr Collins, Dr Koroshetz, Dr Nath, or anyone else on the intramural study. We have requested several times to meet with Dr Koroshetz and Dr Nath so that we could share the

NIH Employs Creative Effort to Boost Current Research for ME/CFS

April 8, 2016 2 Comments

In a first for ME/CFS research, NIH launched a creative grant expansion program to jump start ME/CFS research in the short term by supplementing current grants.

NIH Calls For Additional Research Proposals to Study ME/CFS

April 7, 2016 4 Comments

In essence, the NIH is posting an open call for research scientists with proposals that may fall under the purview of the original grant for the NIH’s intramural ME/CFS study.

Meet the Scientists: Dr Brett Lidbury

April 5, 2016 4 Comments

Meet Dr Brett Lidbury, biometrics researcher at the Australian National University in Canberra, Australia.

Sense About Statistics says: PACE trial doomed by flaws

March 24, 2016 1 Comment

Dr Rebecca Goldin, blogging for Sense About Statistics, has said that flaws in the design of the PACE trial “were enough to doom its results from the start”. Her 7,000-word post described the study’s design and the extensive changes to the planned analyses. Dr Goldin, who is the Director of the organisation, writes, “The study

George Davey Smith to patients: “new era” for ME/CFS research

March 23, 2016 No Comments

In an invited post on UK charity Action for ME’s blog, Professor George Davey Smith of Bristol University has told patients that the UK’s planned, major ME/CFS project, the Grand Challenge could “herald a new era in ME research”. Action for ME’s CEO, Sonya Chowdhury, described the project, which was announced at October’s UK CFS/ME

Clarification on NINDS role in ME/CFS Research

March 19, 2016 No Comments

After the March 8th telebriefing with the NIH, many advocates in the ME community still came away with questions. Billie Moore, NJME/CFSA Advocacy Chair, and member of the USAWGaAnd CDC’s TDW Workgroup, was one of them. Though representatives of the NIH spoke at great length about the big picture of the new ME/CFS efforts that the organization is