The InTime Trial aims to assess the effects of the investigational drug, CT38, in terms of its safety and effectiveness in treating ME/CFS. There will be 18 people between 18 and 60 years of age enrolled in this study and participation will last up to approximately 4 months. Who: Dr. Lucinda Bateman, Located in Salt
The Stanford Genome Technology Center will host the Second Annual Community Symposium on the Molecular Basis of ME/CFS, sponsored by the Open Medicine Foundation, at Stanford University on Saturday, Sept. 29. The following researchers will be presenting: Ronald W. Davis, PhD, Maureen Hanson, PhD, Jonas Bergquist, MD, PhD, Wenzhong Xiao, PhD, Alain Moreau, PhD, Ronald G.
The National Institutes of Health (NIH) has formed a new council focused on how best to advance research into myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The committee, called the NANDS Council Working Group for ME/CFS Research, will be comprised of scientists, clinicians, representatives from advocacy organizations, and individuals with ME, including a representative from
Researchers from Stanford University aim to evaluate the endocrine system in female ME patients to learn how the hypothalamic-pituitary-adrenall (HPA) axis functions in ME/CFS patients. They will do this by evaluating antibodies in 60 ME/CFS cases and through basic endocrine testing. Who: Dr. Montoya at Stanford University is collaborating with Dr. De Bellis at Secondary University at Naples to
Cornell Center for Enervating Neuroimmune Disease aims to collect brain images (MRSs) from individuals with ME to study oxidative stress and neuroinflammation. Dr. Dikoma Shungu hopes to identify possible biomarkers for ME as well as add to the overall understanding of the disease. Who: Cornell Center for Enervating Neuroimmune Disease is collecting information from both ME patients
August was a mixed month in the world of ME research, with some truly innovative studies coming out and a few that needed another couple of rounds with the thesis advisor. Some great books and book chapters debuted — and we faced Afflicted, battling not only the usual stigma, but the directors’ framing of chronically ill patients
The Institute of NeuroImmune Medicine is collecting genetic data from 23andme or ancestry.com for 10,000 patients. Their aim is to generate computer learning programs will search for biomarkers that can be used to develop drug targets and diagnostic tests. Who: Dr. Klimas and Dr. Bested at NSU (Institute of Neuro Immune Medicine) When: Ongoing What: Click here to learn more. When: Ongoing
PETITION UPDATE (Tuesday, September 11, 2018) The CDC has posted an updated, competitive bid solicitation for the development of federal treatment guidelines for ME. The community outcry, and over 8,000 petition signatures, protesting the previous rigged, sole-source contract got the CDC’s attention. Yet the solicitation is still only open through Thursday, September 13 meaning interested applicants
Brain tissue banks are able to provide ME researchers with samples to keep their research moving forward; Dr. Montoya and Dr. Plowey are accepting brain tissue from ME patients postmortem. Studying the brain tissue of ME patients is an important part of understanding more about the disease overall. Who: Dr. Montoya and Dr. Plowey at Stanford
#MEAction is thrilled to announce that we are supporting the work of two research assistants working on myalgic encephalomyelitis (ME) for one year as part of our inaugural #MEAction Young Researcher Fellowship. The goal of the fellowship is to grow the field by supporting aspiring research scientists early in their careers and connecting them with
