Research Archives

ME patients have among the poorest quality of life

August 1, 2015 3 Comments

A new Danish study shows that ME patients have among the greatest levels of disability when compared to other common diseases: [pullquote align=”full” cite=”” link=”” color=”#E7453A” class=”” size=””]ME/CFS has the lowest health-related quality of life score when compared to cancer, diabetes, lupus, stroke, heart disease and chronic renal failure.[/pullquote] The study surveyed 105 patients. 27% of ME

Fund the SMCI Defeat ME/CFS Research Plan

July 31, 2015 1 Comment

ME/CFS is an extremely complex disease that is poorly understood by medical science. To date, much of the research has been conducted on a small scale, targeting single aspects of the disease. Ambitious and groundbreaking, the Solve ME/CFS Initiative’s DEFEAT ME/CFS is a comprehensive plan aimed at mastering the complexity of ME/CFS to render meaningful results, bringing us closer to a cure.

Stanford: Women's immune system genes are different from men's

July 30, 2015 No Comments

Using a new technology that allows the sampling of living T-cells in real time, researchers at Stanford University have found that men and women turn on and off immune system genes differently. This may help explain the much higher incidence of autoimmune diseases like scleroderma, lupus, and multiple sclerosis among women. It may also help explain why

Comment on the US NIH Strategic Plan

July 29, 2015 No Comments

The US NIH requests public comments on their strategic plan The United States National Institutes of Health wants feedback from you on their proposed strategic plan for the next 5 years. Jennie Spotila at Occupy CFS explains why this is important: One of the major weakness of the plan is that it leaves all the

Vote Daily To Help Win Research Money For ME!

July 21, 2015 No Comments

Please vote DAILY to help the National ME/FM Action Network win $2,000 in research money in the Karma Wellness Water contest!

Llewellyn King: Virus Hunters Turn to Chilli Peppers

July 17, 2015 No Comments

Excerpts from Llewellyn King’s article Virus Hunters Turn to Social Media — and Chili Peppers posted on Huffington Post, The Blog at 07/15/2015 3:33 pm EDT Why were two of the world’s most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths

Norway Combats the "Stress Theory" for ME/CFS

July 15, 2015 No Comments

This article by Ola Didrik Saugstad was originally published 14 July 2015, at. 8:00 in leading Norwegian newspaper Dagbladet.no. Excerpts from the online English translation below. Undocumented treatments have led to some of the worst disasters in the history of medicine. Many ME patients feel today that the public health system is exacerbating their condition.

UPDATE: New Details from Open Medicine Foundation's End ME/CFS Project

July 13, 2015 1 Comment

Open Medicine Foundation (OMF) End ME/CFS Project This is a game-changing initiative to find a cure for ME/CFS, a devastating and life-altering disease that affects more than 2.5 million people in the U.S. alone — Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. This is the first time ever that leading world-class scientists will be putting their minds together

Trio of Articles from Palo Alto Online Highlight ME/CFS Patients

July 12, 2015 No Comments

Palo Alto Online recently published a series of three articles highlighting the struggles faced by Mylagic Encephalomyelitis (Chronic Fatigue Syndrome) patients and their caregivers. The series centers around Whitney Dafoe and his father’s research work. All three articles are excerpted and briefly summarized below. Chronic fatigue syndrome saps its victims, but new research may find

Live Webcast – Dr Lipkin and Dr Hornig take the #ChilliMEchallenge

June 17, 2015 No Comments

Tune in to the LIVE webcast on July 1st, 1:00PM EST and watch Dr Ian Lipkin and Dr Mady Hornig take the #ChilliMEchallenge!

Category: Research