Australian research into ME/CFS in adolescents
August 19, 2015
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Research into neurological biomarkers in paediatric ME/CFS begins in Australia
Category: Research
Lipkin and Hornig nail #ChilliMEchallenge as donations top $0.75 million
August 19, 2015
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Three Quarters of a Million Dollars for ME/CFS Research at Columbia University! [pullquote align=”full” cite=”” link=”” color=”#E7453A” class=”” size=””]”ME/CFS is a global problem that we need to address – it robs people of the most productive years of their lives, it causes immunological dysfunction, profound fatigue, cognitive dysfunction. It really destroys peoples’ lives. It is
DePaul Fatigue Study: ME, CFS, MS, Lupus, and Cancer
August 12, 2015
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DePaul University researchers invite persons with ME, CFS, MS, Lupus, and Cancer to participate in a voluntary research study to determine which symptoms may be commonly experienced by individuals in multiple fatiguing illness groups, and which symptoms may be unique to each illness. Participation includes completion of a confidential online questionnaire, which takes approximately 45 minutes to complete.
Study overturns old ideas on mitochondria
August 11, 2015
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“Scientists are reporting the first clear evidence that muscle cells distribute energy primarily by the rapid conduction of electrical charges through a vast, interconnected network of mitochondria — the cell’s “powerhouse” — in a way that resembles the wire grid that distributes power throughout a city.”
OMF Severely Ill Patient Study Gets $500,000 donation
August 7, 2015
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[pullquote align=”right” cite=”” link=”” color=”” class=”” size=””]Very little research has been done in the bedbound patients “Hopefully, the more severely ill will have a stronger signal of what’s going wrong.”[/pullquote] The Open Medicine Foundation’s Severely Ill Patient Big Data study has gotten a HUGE boost with the help of an anonymous donor. This $500,000 donation will
Thank you DePaul! #ChilliMEchallenge for #MEAction
August 3, 2015
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Leonard Jason and the DePaul Research team’s #ChilliMEchallenge supporting #MEAction Thank you to the entire team at DePaul’s Center for Community Research for your incredible work for ME/CFS patients around the world. And thank you for choosing #MEAction for your donation. The #MEAction team is so grateful for your support! Check out the DePaul #ChilliMEChallenge
ME patients have among the poorest quality of life
August 1, 2015
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A new Danish study shows that ME patients have among the greatest levels of disability when compared to other common diseases: [pullquote align=”full” cite=”” link=”” color=”#E7453A” class=”” size=””]ME/CFS has the lowest health-related quality of life score when compared to cancer, diabetes, lupus, stroke, heart disease and chronic renal failure.[/pullquote] The study surveyed 105 patients. 27% of ME
Fund the SMCI Defeat ME/CFS Research Plan
July 31, 2015
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ME/CFS is an extremely complex disease that is poorly understood by medical science. To date, much of the research has been conducted on a small scale, targeting single aspects of the disease. Ambitious and groundbreaking, the Solve ME/CFS Initiative’s DEFEAT ME/CFS is a comprehensive plan aimed at mastering the complexity of ME/CFS to render meaningful results, bringing us closer to a cure.
Stanford: Women's immune system genes are different from men's
July 30, 2015
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Using a new technology that allows the sampling of living T-cells in real time, researchers at Stanford University have found that men and women turn on and off immune system genes differently. This may help explain the much higher incidence of autoimmune diseases like scleroderma, lupus, and multiple sclerosis among women. It may also help explain why
Comment on the US NIH Strategic Plan
July 29, 2015
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The US NIH requests public comments on their strategic plan The United States National Institutes of Health wants feedback from you on their proposed strategic plan for the next 5 years. Jennie Spotila at Occupy CFS explains why this is important: One of the major weakness of the plan is that it leaves all the