Ice Bucket Challenge funds breakthrough
August 21, 2015
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The ALS Ice Bucket Challenge raised more than $100 million, which resulted in a research breakthrough.
Category: Research
Ron Davis on why his NIH proposal was rejected
August 20, 2015
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Ron Davis and Janet Dafoe had to watch as their son Whitney Dafoe deteriorated from an active, world-traveling photographer to bed-bound and at the edge of starvation due to ME/CFS. Davis has built a world-class research team to study ME/CFS, including co-investigators from top institutions including Harvard and Stanford. Despite his team’s track record and expertise, their
NIH awards $766K to Lipkin and Hornig
August 20, 2015
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The US National Institutes of Health (NIH) has awarded a total of $1.3 million for ME research to three teams led by Drs. Ian Lipkin and Mady Hornig, Nancy Klimas and Maureen Hanson, respectively. In an unexpected move, the NIH gave $766,000 to Drs. Ian Lipkin and Mady Hornig and their team at the Center
NIH: ME/CFS research applications are low quality
August 19, 2015
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When we started working on the 21st Century Cures Act lobbying campaign we quickly learned that NIH officials are continuing to tell people that no one is interested in researching ME/CFS and that the research applications they have received have been poor. At Tuesday’s CFSAC meeting Cheryl Kitt, the Deputy Director of the Center for
Australian research into ME/CFS in adolescents
August 19, 2015
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Research into neurological biomarkers in paediatric ME/CFS begins in Australia
Lipkin and Hornig nail #ChilliMEchallenge as donations top $0.75 million
August 19, 2015
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Three Quarters of a Million Dollars for ME/CFS Research at Columbia University! [pullquote align=”full” cite=”” link=”” color=”#E7453A” class=”” size=””]”ME/CFS is a global problem that we need to address – it robs people of the most productive years of their lives, it causes immunological dysfunction, profound fatigue, cognitive dysfunction. It really destroys peoples’ lives. It is
DePaul Fatigue Study: ME, CFS, MS, Lupus, and Cancer
August 12, 2015
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DePaul University researchers invite persons with ME, CFS, MS, Lupus, and Cancer to participate in a voluntary research study to determine which symptoms may be commonly experienced by individuals in multiple fatiguing illness groups, and which symptoms may be unique to each illness. Participation includes completion of a confidential online questionnaire, which takes approximately 45 minutes to complete.
Study overturns old ideas on mitochondria
August 11, 2015
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“Scientists are reporting the first clear evidence that muscle cells distribute energy primarily by the rapid conduction of electrical charges through a vast, interconnected network of mitochondria — the cell’s “powerhouse” — in a way that resembles the wire grid that distributes power throughout a city.”
OMF Severely Ill Patient Study Gets $500,000 donation
August 7, 2015
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[pullquote align=”right” cite=”” link=”” color=”” class=”” size=””]Very little research has been done in the bedbound patients “Hopefully, the more severely ill will have a stronger signal of what’s going wrong.”[/pullquote] The Open Medicine Foundation’s Severely Ill Patient Big Data study has gotten a HUGE boost with the help of an anonymous donor. This $500,000 donation will
Thank you DePaul! #ChilliMEchallenge for #MEAction
August 3, 2015
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Leonard Jason and the DePaul Research team’s #ChilliMEchallenge supporting #MEAction Thank you to the entire team at DePaul’s Center for Community Research for your incredible work for ME/CFS patients around the world. And thank you for choosing #MEAction for your donation. The #MEAction team is so grateful for your support! Check out the DePaul #ChilliMEChallenge