Brain connectivity problems cause signalling problems in CFS
May 15, 2016
No Comments
Australian researchers have found an abnormal centre in the brain which may explain problems with the signalling around the body.
Category: Research
Racianello: PACE obfuscation will continue “until we are all dead”
May 14, 2016
No Comments
Professor Vincent Racianello of Columbia University has said of the PACE trial controversy, “I think they are going to ignore, obfuscate, and give their usual responses until we are all dead. I don’t have hope that the PACE authors, or Lancet, will respond in any meaningful way until there is more of an outcry.” Racianello’s
Patient-friendly version of Edwards et al.'s assessment of ME/CFS research
May 12, 2016
No Comments
ME/CFS patient and science blogger Simon McGrath has produced a patient-friendly version of a recent peer-reviewed editorial on the disease that appeared in the science journal Fatigue: Biomedicine, Health & Behavior. The article, titled The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem, became Fatigue’s most-read paper ever within a week of publication, with over 3700 views as
IACFS/ME conference to include Koroshetz and Fluge
May 12, 2016
No Comments
This year’s conference of the International Association for CFS/ME (IACFS/ME) in Fort Lauderdale, Florida on 27–30 October will include speeches by Dr. Walter Koroshetz and Dr. Øystein Fluge. Dr Koroshetz, who is Director of the National Institute of Neurological Disorders and Stroke and head of the Trans-NIH ME/CFS Working Group, will give the conference’s keynote
Fluge and Mella's search for genetic markers
May 11, 2016
No Comments
In Dr. Albright’s study of the families of ME/CFS patients in Utah, risk of ME was found to be 2.7 times greater in first-degree relatives of ME patients, 2.3 times greater in second-degree relatives, and 1.93 times greater in third-degree relatives. This familial clustering is the basis for new research in Norway, where scientists are
UNSW tests graded exercise on mild CFS patients
May 11, 2016
2 Comments
Australia’s University of NSW’s Psychiatry Department tested a graded activity program on 25 patients with chronic fatigue syndrome. Before the study, patients could complete around 4 hours of ‘moderate intensity exercise’ a week (self-reported). It was not measured or recorded at the end of the program but the study found small improvements in cognitive performance, with some caveats.
Patients send Norwegian Research Council over 700 research ideas
May 6, 2016
1 Comment
The Norwegian Research Council has announced that it received 737 research proposals from ME/CFS patients and their families in response to a call for ideas in April. Patients and others were invited to send in their ideas by May 3, using a short online form. In the call for proposals in April, Mr Hallén had
Progressive Brain Changes in Patients with Chronic Fatigue Syndrome: Are our brains starved of oxygen?
May 5, 2016
8 Comments
A recent Australian study, Progressive Brain Changes in Patients With Chronic Fatigue Syndrome: A Longitudinal MRI Study finds that CFS patients meeting both Fukuda and CCC have decreased grey and white matter volumes in the areas of the brain we use for language processing. Interestingly, patients had increased grey matter volume in the supplementary motor
NIH's Vicky Whittemore to speak at Invest in ME conference
May 3, 2016
3 Comments
Invest in ME (IiME) have announced that Dr Vicky Whittemore of the US National Institutes of Health (NIH) will give keynote speeches at the charity’s biomedical research colloquium and conference in London in early June. IiME described the events as “a fantastic gathering of researchers”. The charity had approached the NIH in order to invite
RCCX Project, Inc.: Explore Role of RCCX Module in Familial Chronic Illness Clusters
May 3, 2016
3 Comments
Physician and patient, Sharon Meglathery MD, describes how she developed the RCCX Theory as a result of clinical observation, being a patient herself and having another patient mention the RCCX. She explains that the full theory is on her website www.rccxandillness.com. She then talks about meeting Karen Herbst MD PhD Endocrinologist through the website and setting up an IRB to study the RCCX Theory. Finally , she describes developing a non-profit to fund research into the RCCX module’s possible connection with familial chronic illness clusters (EDS-HT, CFS, FM, Lyme, MCAS, POTS, Psychiatric Spectrum, Pain, Autoimmune/Immunological, Endocrine, Adipose, Neurological Disorders, etc.). Donations can be made at www.rccxproject.org.