OMF: A look back on 2017 Highlights
April 26, 2018
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OMF presents a look back on their 2017 highlights in research, outreach, advocacy, recognition, and more.
Category: Research
NIH reply to my open letter (and a legal question from a peasant)
April 24, 2018
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Samuel Wales, who has had ME for many years, has kindly allowed us to republish his latest blog post, which can be found here. Intro My previous post contains my open letter to Francis Collins. It got a lot of readers. Many were from NIH. But who exactly at NIH is listening? I was hoping
OMF to Attend First ME/CFS Conference in Montreal
March 15, 2018
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“Advancing an International Research Agenda to Address ME/CFS Research Priorities,” the first International Canadian Conference on ME/CFS will be held May 3 – 5, 2018. Ronald W. Davis, PhD, OMF SAB Director and Linda Tannenbaum, OMF CEO/President will be presenting.
The First Draft of the Common Data Elements for ME/CFS is Ready for Review
March 2, 2018
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The first draft of the ME/CFS Common Data Elements (CDE) project is now available to review, conducted by the National Institute of Neurological Disorders and Stroke (NINDS). Read the first draft of the Common Data Elements for ME/CFS here. The purpose of the CDE Project is to standardize the collection of investigational data in order to facilitate
Jackson Laboratory ME/CFS Center Starts Blog to Connect with Patients
March 2, 2018
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The main goal of the JAX CRC project is to understand how the immune system, microbiome, and metabolome are connected and disrupted in ME/CFS, and to discover the biological basis of this chronic disease. We are hopeful that the knowledge gained from these studies will help to develop molecular markers for the diagnosis of ME/CFS, and the development of new treatments based on these new targets discovered.
Update on the Metabolomics Validation Study by OMF
February 10, 2018
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OMF funded Metabolomics Validation Study update
OMF receives a $5 Million Gift from the Pineapple Fund – Send a Note of Thanks
February 10, 2018
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OMF invites the ME/CFS community to join together to thank the Pineapple Fund by adding your appreciation to our online community-wide thank you card.
OMF receives $5 million donation from Pineapple Fund
February 2, 2018
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Pineapple Fund was so moved by the outpouring of support from the patient community and the importance of OMF’s research that they have increased their donation to a total of $5 million for research.
Don't Miss the CFS Advisory Committee Meeting This Wednesday & Thursday
December 4, 2017
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CFSAC is Wednesday (12/13) and Thursday (12/14) of this week! Please stand with us as we continue to urge the U.S. government to fund ME fairly and equally. View the calendar event here. This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting will take place at the Hubert H. Humphrey Building, 200 Independence Avenue, S.W., Washington,
Solve ME/CFS Initiative Announces 2017 Ramsay Award Recipients
November 1, 2017
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The Solve ME/CFS Initiative (SMCI) announced the recipients of the 2017 Ramsay Award Program on Tuesday. The Ramsay Award Program, now in its second year, is a competitive grant that funds ME/CFS researchers at every stage of their careers. The five winning proposals receive one year of funding to research a diverse range of topics including immunology, bioenergetics, metabolomics, microbiome and neuroendocrine biology. The awardees hail from six different countries across the globe.