Research Archives

Category: Research

Welcome Jaime Seltzer to the #MEAction Team – Director of Scientific and Medical Outreach

June 11, 2018 4 Comments

Thanks to your generous support of our Indiegogo campaign, #MEAction is adding a new team member! We’re thrilled to welcome Jaime Seltzer as our Director of Scientific and Medical Outreach. She will work with ME clinicians and researchers in order to facilitate engagement with the patient community and the public, inspire new scientists and clinicians

OMF Creates Harvard ME/CFS Collaborative Research Center

June 1, 2018 9 Comments

The Open Medicine Foundation (OMF) is proud to announce that it has funded $1.8 million for the establishment of a new ME/CFS Collaborative Research Center at the Harvard Medical School affiliated hospitals, which includes Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center. The new Harvard Center will be led

OMF Receives $1 million Donation for ME/CFS Research

June 1, 2018 No Comments

The Open Medicine Foundation received a $1 million anonymous pledge to escalate Dr. Ron Davis’s systems biology approach with Robert Phair, PhD, at the ME/CFS Collaborative Research Center at Stanford University. This will expand the search for and testing of their “metabolic trap” hypothesis, and will enable Dr. Davis to hire an additional scientist with

How Much Does the UK Dept. of Health Spend on ME?

May 31, 2018 No Comments

MP Carol Monaghan (Glasgow North West) had asked the UK Secretary of State for Health and Social Care how much it plans to allocate to biomedical research for Myalgic Encephalomyelitis in the current financial year? In quotations below is the response from the Minister of State at the Department of Health and Social Care, Caroline Dinenage. Her response only references past spending,

Read about the Ongoing Science at OMF

May 31, 2018 No Comments

The Open Medicine Foundation (OMF) is continuing to fund the ME/CFS Collaborative Research Center at Stanford. These are the projects currently underway: T cells and immunology Michael Sikora, in collaboration with Mark Davis, PhD, Lars Steinmetz, PhD, and Ron Davis, PhD, at Stanford University, will examine the role of T cells and immune-related genes in ME/CFS.

Open Medicine Foundation Announces Harvard Collaborative Research Center

May 23, 2018 2 Comments

Today, the Open Medicine Foundation announced that it had funded a new ME/CFS Collaborative Research Center at Harvard under Ron Tompkins and Wenzhong Xiao, to the tune of $1.8 million dollars. The Center will include with Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center. There are two main goals

The NIH Plan for ME is Dismal

May 21, 2018 5 Comments

Occupy M.E. describes the NIH’s current plan to address the crisis of Myalgic Encephalomyelitis as “do a little and wait.” Blogger Jennie Spotila describes the agency’s plan, which was found buried in the NIH 2019 budget request sent to Congress, as follows: NIH is going to wait for the new Collaborative Research Centers to lead

Calling all Patients: Fill Out the Research Survey about PEM

May 21, 2018 4 Comments

DePaul University is asking the patient population to fill out a survey to better understand the effects of post-exertional malaise (PEM) in people with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. The patient community aided in the development of this questionnaire to more accurately define and measure abnormal responses to physical and/or cognitive exertion. “We are

OMF: A look back on 2017 Highlights

April 26, 2018 1 Comment

OMF presents a look back on their 2017 highlights in research, outreach, advocacy, recognition, and more.

NIH reply to my open letter (and a legal question from a peasant)

April 24, 2018 4 Comments

Samuel Wales, who has had ME for many years, has kindly allowed us to republish his latest blog post, which can be found here. Intro My previous post contains my open letter to Francis Collins. It got a lot of readers. Many were from NIH. But who exactly at NIH is listening? I was hoping