Research Archives

NIH Creates Council to Advance ME Research

September 15, 2018 8 Comments

The National Institutes of Health (NIH) has formed a new council focused on how best to advance research into myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The committee, called the NANDS Council Working Group for ME/CFS Research, will be comprised of scientists, clinicians, representatives from advocacy organizations, and individuals with ME, including a representative from

Enrolling: Stanford Neuroendocrine Investivagtion

September 14, 2018 No Comments

Researchers from Stanford University aim to evaluate the endocrine system in female ME patients to learn how the hypothalamic-pituitary-adrenall (HPA) axis functions in ME/CFS patients. They will do this by evaluating antibodies in 60 ME/CFS cases and through basic endocrine testing. Who: Dr. Montoya at Stanford University is collaborating with Dr. De Bellis at Secondary University at Naples to

Enrolling: Cornell Brain Imaging

September 7, 2018 No Comments

Cornell Center for Enervating Neuroimmune Disease aims to collect brain images (MRSs) from individuals with ME to study oxidative stress and neuroinflammation. Dr. Dikoma Shungu hopes to identify possible biomarkers for ME as well as add to the overall understanding of the disease. Who: Cornell Center for Enervating Neuroimmune Disease is collecting information from both ME patients

August 2018 — Research Roundup

September 1, 2018 No Comments

August was a mixed month in the world of ME research, with some truly innovative studies coming out and a few that needed another couple of rounds with the thesis advisor. Some great books and book chapters debuted — and we faced Afflicted, battling not only the usual stigma, but the directors’ framing of chronically ill patients

Enrolling: 23andMe Genetic Testing Study

August 31, 2018 10 Comments

The Institute of NeuroImmune Medicine is collecting genetic data from 23andme or ancestry.com for 10,000 patients. Their aim is to generate computer learning programs will search for biomarkers that can be used to develop drug targets and diagnostic tests. Who: Dr. Klimas and Dr. Bested at NSU (Institute of Neuro Immune Medicine) When: Ongoing What: Click here to learn more. When: Ongoing

Stop CDC from Hiring Shoddy Contractor for ME Treatment Guidelines!

August 26, 2018 No Comments

PETITION UPDATE (Tuesday, September 11, 2018) The CDC has posted an updated, competitive bid solicitation for the development of federal treatment guidelines for ME. The community outcry, and over 8,000 petition signatures, protesting the previous rigged, sole-source contract got the CDC’s attention. Yet the solicitation is still only open through Thursday, September 13 meaning interested applicants

Enrolling: Stanford School of Medicine Brain Tissue Bank

August 24, 2018 No Comments

Brain tissue banks are able to provide ME researchers with samples to keep their research moving forward; Dr. Montoya and Dr. Plowey are accepting brain tissue from ME patients postmortem. Studying the brain tissue of ME patients is an important part of understanding more about the disease overall. Who: Dr. Montoya and Dr. Plowey at Stanford

Announcing Launch of the #MEAction Young Researcher Fellowship

August 21, 2018 8 Comments

#MEAction is thrilled to announce that we are supporting the work of two research assistants working on myalgic encephalomyelitis (ME) for one year as part of our inaugural #MEAction Young Researcher Fellowship. The goal of the fellowship is to grow the field by supporting aspiring research scientists early in their careers and connecting them with

Do You Have MCAS? Fill Out this Survey.

August 20, 2018 No Comments

If you have been diagnosed with mast cell activation syndrome (MCAS), please take a minute to fill out this anonymous survey. The Mastocytosis Society will use data from the survey in its presentations at a National Institutes of Health (NIH) workshop on MCAS in early September. This survey is only open until Saturday, August 25th at 10p.m. EDT /

Enrolling: Cornell Exercise Testing Study

August 17, 2018 No Comments

Who: Cornell Center for Enervating Neuroimmune Disease What: The Center is collecting information from both ME patients and sedentary controls. You will first have a quick phone call to determine eligibility. If eligible, you will meet with a doctor (theirs or yours) to be examined or for blood and urine tests. Then you will complete questionnaires. Finally, you

Category: Research