Press releases Archives

ME/CFS Protesters Interrupt House Appropriations Hearing

March 4, 2020 No Comments

ME/CFS Protesters Interrupt House Appropriations Hearing FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Today, #MEAction protesters wearing red #millionsmissing t-shirts interrupted NIH Director Dr. Francis Collins’s opening statement to the House Appropriations LHHS Subcommittee hearing to demand the NIH take urgent, comprehensive action to stem the crisis of ME/CFS that has been growing unchecked for more than three decades.

UK Parliament will debate ME in historic House of Commons debate

January 21, 2019 No Comments

UK PARLIAMENT WILL DEBATE ME IN HISTORIC HOUSE OF COMMONS DEBATE FOR IMMEDIATE RELEASE Parliament has announced that it will debate the treatment and funding of patients with myalgic encephalomyelitis (ME), a debilitating and serious, multi-systemic disease. The ME debate will take place in the Main Chamber on Thursday afternoon, 24th January. This debate follows

ACTIVISTS PROTEST SPEAKER AT COLUMBIA UNIVERSITY CONFERENCE

October 19, 2018 No Comments

ACTIVISTS PROTEST SPEAKER AT COLUMBIA UNIVERSITY CONFERENCE Human Rights Abuser Per Fink is Not Welcome in New York Follow the story at: @meactnet and #ScienceNotStigma FOR IMMEDIATE RELEASE October 18, 2018- New York, NY Activists with NY #MEAction will converge on Columbia University Saturday, October 20that 8:00 a.m. to protest Danish Physician Per Fink’s appearance at the 4thColumbia

#MEACTION REJECTS SMILE TRIAL OF THE LIGHTNING PROCESS FOR CHRONIC FATIGUE SYNDROME

September 20, 2017 2 Comments

FOR IMMEDIATE RELEASE: 21/09/17 CONTACT: [email protected] #MEAction Rejects the Findings of the SMILE Trial of The Lightning Process for Chronic Fatigue Syndrome Trial Uses Flawed Methodology That Can Lead To False Positives Following the release of the results of the SMILE trial, Ben HsuBorger of ME Action said: “The SMILE trial of the Lightning Process, a

Meet the Millions Missing – Protest to Raise Awareness of ME in Scotland

May 12, 2017 1 Comment

Press Release Details of the Event Millions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the Scottish Parliament to raise awareness of Myalgic Encephalomyelitis (ME – sometimes called Chronic Fatigue Syndrome) and the devastating impact it has on tens of thousands of people in Scotland. Protests are being held in

#MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome

November 2, 2016 3 Comments

FOR IMMEDIATE RELEASE: Wednesday, November 2, 2016 CONTACT: L.A. Cooper |[email protected] and [email protected] #MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome Patients with ME/CFS Urge NHS to Adopt Scientifically-Sound Approaches to Treatment Study Finds No Difference in Treatment for ME/CFS Patients At Long-Term Follow-Up According to reports in The Guardian and

#MillionsMissing Holland protest  against social exclusion

October 13, 2016 No Comments

Worldwide protest of patients with ME against social exclusion After being ignored for years and being excluded from participation in society, ME patients have had more than enough of it. With a virtual march on social media and demonstrations from America to Australia patients call for recognition of their disease and demand care and research.

Washington DC Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

September 24, 2016 No Comments

MEDIA ADVISORY FOR: Tuesday, September 27, 2016CONTACT: Anna Zuccaro | [email protected] 4PM: DC Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue SyndromeThousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and EducationMyalgic Encephalomyelitis is a Neuroimmune Disease That

Seattle Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

September 24, 2016 1 Comment

MEDIA ADVISORY FOR: Tuesday, September 27, 2016 CONTACT: Anna Zuccaro | +1-914-523-9145 | [email protected] TUESDAY 12PM: Seattle Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education

SF Bay Area Residents Rally Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

September 24, 2016 No Comments

MEDIA ADVISORY FOR: Tuesday, September 27, 2016 CONTACT: Anna Zuccaro | +1-914-523-9145 | [email protected] TUESDAY 11AM: Bay Area Residents Rally Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education

Category: Press releases