Politics Archives

Who is advising the Australian government on ME and CFS research and treatment guidelines?

May 22, 2018 No Comments

Australian research is underfunded and the government’s clinical guidelines are outdated so the Australian government’s ME and CFS advisory committee is welcomed. It provides an important opportunity to call on the government to fund biomedical research and to give Australian doctors desperately needed clinical guidance. However, there are mixed perspectives on the committee.

UK Call to Action: Ask Your MP To Sign EDM 1247!

May 16, 2018 9 Comments

If you are in the UK, please email your MP asking them to sign Early Day Motion 1247. What is an EDM? Early day motions (EDMs) are motions submitted for debate in the House of Commons for which no day has been fixed. As there is no specific time allocated to EDMs very few

U.S. Congress Introduces Resolution for ME

May 16, 2018 7 Comments

Yesterday, the U.S. Congress introduced a resolution in the Senate to show support for research and medical education for Myalgic Encephalomyelitis (ME).

Australian Parliament Recognises Urgent Need for Biomedical Research for ME

May 10, 2018 3 Comments

The Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) patient and research communities are delighted the Australian parliament officially recognise the urgent need for biomedical research in the field, passing a motion in the Senate to mark International ME and CFS Awareness Day.

Ten Percent of U.S. House Representatives Show Support for ME

March 21, 2018 2 Comments

Yes, you read right! Thanks to the incredible community outreach over the course of just a few days, TEN percent of the House of Representatives signed a letter to the chairs of the House Appropriations Committee advocating for ME/CFS. Forty-four members from twenty states and the District of Columbia signed on – thirteen more than

Urgent Congressional Action! Ask your Rep. to Sign Letter for ME/CFS

March 7, 2018 12 Comments

URGENT Congressional Action! Please take this opportunity to call and email your House representative today to request they sign a letter that inserts favorable language about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) into the House Appropriations Committee report for the FY19 budget. The deadline for your representative to sign the letter is Wednesday, March

Westminster Hall Debate on the PACE trial and its effects on people with ME

February 26, 2018 9 Comments

Westminster Hall Debate on the PACE trial and its effects on people with ME: an analysis of the response from Caroline Dinenage MP, Minster of State for Care On the 20 February 2018 a debate was held in the Palace of Westminster (UK) on the PACE trial and its effects on people with ME. (See

PACE Trial 'medical scandal' Sparks UK Parliament Debate

February 20, 2018 1 Comment

Members of Parliament heard about the flaws of the PACE Trial – and its devastating effects on people with Myalgic Encephalomyelitis (ME) – in a Westminster Hall debate today. Twenty-six MPs attended the debate.

What ME Activists Can Learn from the AIDS Crisis

February 19, 2018 3 Comments

I read “How To Survive A Plague: The Inside Story of How Citizens and Science Tamed AIDS” by David France to learn lessons from the AIDS movement that could help ME activism, and to summarize it for people without the energy and/or time to read it. The book tells an amazing story but it is

Volunteers on Radio Scotland

February 15, 2018 1 Comment

Listen to MEAction volunteers on Radio Scotland! Available as an MP3 (7Mb) or stream via BBC iPlayer (starts at 36.23) On 14th of February 2018, my mum (Janet) and I were on Radio Scotland to discuss #MEAction’s Millions Missing campaign in Scotland. The piece was instigated after the Millions Missing Time for Unrest event at the

Category: Politics