This is a letter to the community from #MEAction, Solve ME/CFS, and MassCFIDS about our recent U.S. congressional work. Dear Friends, We want to clarify an important issue about our recent advocacy work. After two years of fierce advocacy by our community, we are thrilled that Senator Ed Markey of Massachusetts has now introduced a
Representatives from across federal agencies will convene for the next two days – tomorrow, June 20th and June 21st – for the bi-annual Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting. CFSAC is an important committee that provides advice and recommendations to the Secretary of Health and Human Services (HHS) on issues related to Myalgic Encephalomyelitis
Next Thursday, Parliament will hold a 3-hour Westminster Hall debate on Myalgic Encephalomyelitis treatment and research in a monumental victory for the ME community. In preparation for the debate, #MEAction UK volunteers prepared a parliamentary briefing along with three other charities – ME Association, Action for M.E., and the ME Trust. (Learn more about how
A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m. We need to encourage as many of our MPs as possible to attend. Contacting your MP has never been easier with this new tool. Simply enter your postcode below to get started. Urge your MP
#MEAction Scotland appeared before the Scottish Parliament Petitions Committee on June 7th to give evidence on its petition to review treatment of ME patients in Scotland. Watch the hearing: Not all petitioners are called before the Parliament’s Petitions Committee, so the fact that #MEAction Scotland has been summoned is very encouraging. The petition has received 7,000 signatures, and
A key briefing to help parliamentarians understand the issues facing people affected by M.E. has been co-authored by #MEAction UK, the ME Association, Action for M.E., and the ME Trust. Read the Parliamentary briefing. Our collaboration on this was prompted by a discussion with the UK team responsible for the impact campaign for the M.E.
Mark your calendars! A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m. The fight for a larger debate on ME has had cross party support with Carol Monaghan MP securing the debate, along with the support of five other MPs. #MEAction UK and
MPs across the parties in the U.K. came together today to argue the case for scheduling a debate about Myalgic Encephalomyelitis (ME) in the main chamber of the House of Commons. Watch the video below. Carol Monaghan MP joined five other MPs on June 5th to argue the merits of holding a debate on ME
by Kim Gurav and Susan Cole #MEAction Scotland volunteers have been called before the Scottish Parliament’s Petitions Committee on Thursday, 7th June to give evidence on their petition to review treatment of ME patients in Scotland. The petition has received 7,000 signatures, and calls on the Scottish Government to invest in biomedical research into ME,
MP Carol Monaghan (Glasgow North West) had asked the UK Secretary of State for Health and Social Care how much it plans to allocate to biomedical research for Myalgic Encephalomyelitis in the current financial year? In quotations below is the response from the Minister of State at the Department of Health and Social Care, Caroline Dinenage. Her response only references past spending,
