Past actions Archives

ME Awareness – Tom's Appeal

May 17, 2015 No Comments

My brother has made a video to promote his participation in the Edinburgh marathon (31st May) in aid of ME Research UK. Although partly a fundraising initiative, the video also delivers a powerful message and can be used as a tool for raising awareness. It has been viewed over 4,000 times in one week, and so far raised roughly the same amount in £. Please share as widely as possible. https://www.youtube.com/watch?v=dgovI7Q273g (or go to YouTube and search for ‘ME awareness – Tom’s appeal”

Take Action for Equal Funding at NIH

May 15, 2015 No Comments

Join hundreds of patients in emailing Secretary of Health Burwell and NIH Director Collins for Equal Funding for ME/CFS!

More NIH Funding Needed for ME/CFS Research!

May 13, 2015 No Comments

According to the recent Institute of Medicine report, up to 2.5 million Americans have chronic fatigue syndrome (ME/CFS). Patients with ME/CFS are more functionally impaired than those with other disabling illnesses, including congestive heart failure, multiple sclerosis, and end-stage renal disease. The NIH funds ME/CFS at $5 million per year, and that amount is estimated by

Emerge Australia Health and Welfare Survey

April 25, 2015 No Comments

Federation University, in collaboration with Emerge Australia, would like to invite you to participate in a health and welfare study of people with ME/CFS.

Fund Mike's North Pole Marathon

April 10, 2015 No Comments

Running a 26.2 mile marathon at the north pole for IiME This is the challenge of a lifetime and it is the result of my daughter having ME since September 2008. I have seen firsthand how damaging ME can be to a person’s life, their prospects and their family. Support Mike’s marathon and raise

Category: Past actions

ME Awareness – Tom's Appeal

Take Action for Equal Funding at NIH

More NIH Funding Needed for ME/CFS Research!

Emerge Australia Health and Welfare Survey

Fund Mike's North Pole Marathon