#MillionsMissing Archives

South Africa: Investigative news channel features ME & #MillionsMissing

February 24, 2017 No Comments

The South African investigative journalism program Carte Blanche has aired a well-researched segment featuring the struggle of the ME community around the world. An article about women suffering with ME in South Africa accompanies the video. The segment includes footage from the #MillionsMissing protest in September. The ME/CFS Foundation South Africa was behind getting the program

Winners of the #MillionsMissing Art competition

January 12, 2017 1 Comment

We’re excited to announce the winners of the #MillionsMissing Art competition. 1st prize went to CJ Janzen from Cambridge, Ontario who made two amazing songs about ME. Listen here: Myalgic Encephalomyelitis Song – Rough by CJ Janzen | Free Listening on SoundCloud A Song For M.E. by CJ Janzen | Free Listening on SoundCloud 2nd

Update: the ongoing work of #MillionsMissing

December 22, 2016 1 Comment

Momentum continues from the #MillionsMissing campaign that was born last May. Activists took to the streets worldwide in 11 cities in May – and in 25 cities in September – to protest their government’s neglect of people with ME. While the posters are now stored away, activism has continued behind the scenes in follow-up

#MEAction US protest demands

November 30, 2016 4 Comments

These demands were originally issued for the May 25, 2016 MillionsMissing demonstrations. Minor revisions were made to the demands in November 2016 to reflect community input on the definition, the primer, the name, and the need for improvements in clinical care. You can access and download a pdf of the revised protest demands by clicking

SPEECHES FROM THE FRONT LINES OF #MILLIONSMISSING: TASHA & ZARA

October 11, 2016 1 Comment

FROM THE FRONT LINES OF #MILLIONSMISSING ROUND 2: SPEECHES BY TASHA AND HER DAUGHTER ZARA (AT NYC PROTEST)

Join the 'Patient uprising from our beds': Melbourne MillionsMissing on 12 October

October 10, 2016 No Comments

Melbourne’s MillionsMissing will be on the steps of Parliament House, Spring St, Melbourne, from 1pm to 2pm on Wednesday 12 October 2016.

MillionsMissing/MillonesAusentes, únete a la protesta en español

September 23, 2016 2 Comments

This is a blog created by spanish-talking pwme to spread the knowledge about ME/CFS and increase activism. Este es un blog sobre SFC/EM en español para visibilizar la enfermedad y aumentar el activismo!

Join us in the #isignedfive challenge!

September 23, 2016 No Comments

Want a way to raise your voice this #MillionsMissing but don’t know how? Perhaps you’re unable to attend a protest in person, or want to do a little something extra to make a difference. The stopGET petition against graded exercise therapy trials is one of the most vital actions circulating at the moment. With a

US: #MillionsMissing Protest Demands

September 22, 2016 7 Comments

Overview Ahead of the May 2016 #MillionsMissing protests, members of the US protest steering committee drafted a set of demands to the US government relating to research and medical treatment for ME. After the protest, we solicited broader community feedback via an online survey, which was completed by 191 respondents. The survey demonstrated overwhelming support

Join the MILLIONSMISSING Chicago Protest/Day of Action

September 20, 2016 No Comments

The Chicago protest #MillionsMissing will feature talks by Dr. Leonard Jason, Dr. Marcie Zinn, well-known epidemiologists; Carol Head, of Solve ME/CFS; Barbara Morrison; ME/CFS patients; and families and friends. It will take place at the James Thompson Center, 100 W. Randolph St, Chicago between 11:30am-12:30pm. Please click below to attend, learn more and donate to

Category: #MillionsMissing