Category: #MillionsMissing
Australian Parliament Recognises Urgent Need for Biomedical Research for ME
May 10, 2018
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The Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) patient and research communities are delighted the Australian parliament officially recognise the urgent need for biomedical research in the field, passing a motion in the Senate to mark International ME and CFS Awareness Day.
How to Protest Virtually with the #MillionsMissing on May 12th
May 9, 2018
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Join the protest from your home. Here are several ways to take action.
OMF shares a Patient’s Reflection on UNREST
May 9, 2018
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This anonymous patient was truly moved by viewing Unrest and is sharing this personal reflection to encourage action.
Why we’re Targeting the NIH for #MillionsMissing
April 30, 2018
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The logic is crystal clear for why the National Institutes of Health (NIH) should make a serious commitment to funding research for ME/CFS. The disease affects a high proportion of Americans – estimates range from 1 to 2.5 million people; the disease is highly debilitating, leaving 75 percent unable to work and 25-29
A song for ME: Blowin’ in the Wind
April 24, 2018
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The following arrangement of Blowin’ in the Wind, with alternative lyrics about the struggles faced by people with ME, is performed by patients and their carers from around the world: If you would like to play and/or sing this song at a #MillionsMissing protest on 12 May, or at any other event, please use
Join the #MillionsMissing – from your bed, your home, a local park
April 6, 2018
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#MillionsMissing is fast approaching on May 12th, and we are thrilled to see cities across the world planning demonstrations with bullhorns and speeches. But, we want to emphasize that #MillionsMissing is a movement of “can-you-see-ME-now” at any level. We strongly encourage people who cannot leave their homes to join the fight from your
Voices from Sacramento: Janet Dafoe and Ashley Haugen
June 7, 2017
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Some of you may know Dr. Janet Dafoe and her daughter Ashley Haugen through their tireless advocacy work for ME. Dr. Dafoe’s son and Ashley’s brother, Whitney Dafoe, has severe ME, and is the impetus behind their efforts to raise funding, raise awareness, and raise hell. These statements were read at the Sacramento California rally on June 2, 2017.
Show your Solidarity with the #MillionsMissing on May 12th – Protest Virtually
May 10, 2017
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The #MillionsMissing are taking to the streets in 17 cities across the world on Friday, May 12th to once again demand change for people with Myalgic Encephalomyelitis (ME). Join the protest virtually Show your solidarity for the #MillionsMissing movement from your bed by laying out your empty shoes (to represent the life your are missing
#MillionsMissing Will Take to the Streets on May 12th – Join Them!
May 10, 2017
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The #MillionsMissing are taking to the streets in 17 cities across the world on Friday, May 12th to once again demand change for people with Myalgic Encephalomyelitis (ME). Five cities in the UK are hosting #MillionsMissing rallies – with London taking a stance before the department of health for the third time. Norway will demonstrate