Medicine Archives

#MEAction Advocates will Speak at Stanford MEDx Conference this Weekend

September 21, 2019 1 Comment

#MEAction advocate, Terri Wilder, and #MEAction board member, Ryan Prior, are co-presenting at the Stanford MEDx conference this weekend about how #MEAction empowers the myalgic encephalomyelitis (ME) community through technology. Terri and Ryan will discuss the history of #MEAction, its founders, its reason for being, its social justice philosophy, its policy goals, the PACE trial,

Patient Registry is the Key to Achieving Big Data for M.E.

September 5, 2019 No Comments

We were excited to see #MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, give a talk about “Big Data and myalgic encephalomyelitis (ME)” yesterday at Stanford University. Researchers and clinicians have gathered at Stanford to discuss the latest and ongoing research into ME for the Third Annual Working Group Meeting on the Molecular Basis

#MEAction’s Postcards to Doctors is an Unprecedented Success!

August 30, 2019 No Comments

#MEAction’s Postcards to Doctors initiative has been successful beyond our wildest hopes! Since August 1, we’ve received requests for more than 3,500 postcards from hundreds of individuals and groups. People from all over the United States have signed up to write to their clinicians asking them to take #MEAction’s CME program – we’ve sent out

U.S School Nurses, Teachers & Counselors can now take Continuing Education Course about Pediatric ME/CFS

August 16, 2019 No Comments

School nurses, counselors, social workers or teachers in any U.S. state can now earn earn 3.25 Continuing Education credits (CNE) for completing a course on pediatric myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The course is titled, ““Why Can’t This Child Get to Class? Learn How ME/CFS Keeps Youth from Attending School.” The course features Dr, Peter Rowe,

#MEAction Seeks Applicants for Blue Ribbon Fellowship at Bateman Horne Center

July 24, 2019 2 Comments

Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical students, med-peds, internal medicine and family practice residents. We are delighted to announce the #MEAction Blue Ribbon fellowship at the Bateman Horne Center (BHC) with Dr. Lucinda Bateman. The clerkship/rotation will consist of one month spent

CBT and GET survey results published by Forward-ME Group

April 3, 2019 No Comments

In January 2019, a survey investigating the impact of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for people with ME, CFS or PVFS diagnoses in the UK was made available online. It was intended to provide up-to-date data on the impact these therapies have had on people who have been offered or received

GET and CBT are not safe for ME – summary of survey results

April 3, 2019 2 Comments

Listen to the recording: #MEAction UK Lay Summary of the 2019 Forward ME Group CBT & GET Survey Topline findings A new patient survey of 2274 respondents has confirmed that graded exercise therapy (GET) is harming a large majority of people with ME receiving this treatment in the UK. A majority of people with ME

Australia: School Study on Teenagers with Chronic Fatigue Syndrome

March 12, 2019 No Comments

A recent study of Australian teenagers with chronic fatigue syndrome found CFS impacted their development of academic, cognitive and social skills. Students with CFS missed an average of 42% of classes over a term, 37% more than their healthy peers. The study recommends school staff be trained to understand chronic fatigue syndrome and its impact

Meet the Scientists: Australia’s Prof. Don Staines

March 12, 2019 No Comments

‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We ask them about their current research and get to meet the people working to improve our health. The series introduces early career researchers through to interviewing scientists and clinicians who have been working on the problems for decades.

Get involved: support science and advocacy this April

February 25, 2019 No Comments

April is going to be an incredibly exciting month for advocacy and for research into ME! The NIH is hosting a conference on ME in early April along with a Young Investigators Workshop specifically geared towards early-career investigators with interest in ME. Concurrently, there will be a Congressional lobbying push hosted by #MEAction and SMCI

Category: Medicine