I’m Carol Head, President of the Solve ME/CFS Initiative, here with Linda Tannenbaum. Our organization conducts innovative research to solve ME/CFS. We conduct research and have created a biobank of ME/CFS patient information for use by all researchers. Before I begin, a quick note of thanks to Mark Cormizand. As you may know, we are
The Invest in ME conference in London on Friday, 3 June is the first of three major ME/CFS conferences this year and there are indications that patients may be able to access live updates or recorded presentations from all three. Some audience members attending the Invest in ME conference are expected to report live on
I’m Ron Davis and my son is missing… Linda Tannenbaum has really helped us a lot in raising funding. We have enough funding that we managed to assemble a very small team at the Stanford Genome Technology Center. This team is really excellent in doing research. And we are making progress. Now, it is very
Biomedical scientists from a range of disciplines met for a two-day workshop in Bristol on 13 and 14 April to discuss the ME/CFS “Grand Challenge” project, which plans to use a “big data” approach to the biochemistry of the illness and determine whether it is, as suspected, several different diseases. The study will be the biggest
A new study was published recently in the journal Chronic Illness, entitled Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndrome by Pendergrast et al. The authors of the paper included the well-known ME/CFS researchers Julia L. Newton and Leonard Jason. Newton is most often recognized for her studies in muscular function in
The latest webinars in Solve ME/CFS Initiative’s 2016 series will soon take place, with Dr Jarred Younger speaking on 19 May and Dr Jose Montoya on 16 June. Dr Younger is Associate Professor in the Departments of Psychology, Anesthesiology and Rheumatology at the University of Alabama at Birmingham, and Director of the Neuroinflammation, Pain and
The Norwegian Research Council has announced that it received 737 research proposals from ME/CFS patients and their families in response to a call for ideas in April. Patients and others were invited to send in their ideas by May 3, using a short online form. In the call for proposals in April, Mr Hallén had
A recent Australian study, Progressive Brain Changes in Patients With Chronic Fatigue Syndrome: A Longitudinal MRI Study finds that CFS patients meeting both Fukuda and CCC have decreased grey and white matter volumes in the areas of the brain we use for language processing. Interestingly, patients had increased grey matter volume in the supplementary motor
Dr Jarred Younger has completed another in his ongoing series of live webinars and recorded videos on his research into ME/CFS, fibromyalgia and Gulf War Syndrome (GWS) at the University of Alabama. Dr Younger is Director of the Neuroinflammation, Pain and Fatigue Laboratory at the university. The latest webinar was Part II of a Q&A
Physician and patient, Sharon Meglathery MD, describes how she developed the RCCX Theory as a result of clinical observation, being a patient herself and having another patient mention the RCCX. She explains that the full theory is on her website www.rccxandillness.com. She then talks about meeting Karen Herbst MD PhD Endocrinologist through the website and setting up an IRB to study the RCCX Theory. Finally , she describes developing a non-profit to fund research into the RCCX module’s possible connection with familial chronic illness clusters (EDS-HT, CFS, FM, Lyme, MCAS, POTS, Psychiatric Spectrum, Pain, Autoimmune/Immunological, Endocrine, Adipose, Neurological Disorders, etc.). Donations can be made at www.rccxproject.org.
