#MEAction Projects Archives

Severe ME Artists Project

July 12, 2021 11 Comments

#MEAction is excited to announce our Severe ME Artists Project which will feature work from those within the severe ME community in honor of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their artwork (whether it be writing, photography, drawing, singing, or any other medium that illustrates their talents) with multiple ways to participate based on a person’s energy levels.

#MEAction’s BIPOC Clinical Outreach Group Reflects on a Year’s Work

April 26, 2021 No Comments

Outreach to BIPOC communities has always been a challenge in ME/CFS. In a disease where diagnosis is so hard to come by, who gets a diagnosis is not a matter of prevalence but a matter of privilege. While community-based studies show just as many Black people get ME as white people, if not more, white

Read More Pieces of Work from The Writing From Our ME Lives Group

read Pieces from Writing from our ME Lives Group

April 9, 2021 2 Comments

#MEAction is excited to share two pieces of work from the Writing From Our ME Lives writing group. We will be sharing more work in the coming days! Hope you enjoy their work. If you are interested in joining the next Writing From Our ME Lives meeting, they meet on every Thursday at 11am PST.

Collage of the 5 winning postcards with Join our 2021 campaign written on the side

Postcards to Doctors Continues – Sponsor or Participate!

March 10, 2021 2 Comments

PLEASE NOTE: The Unrest CME has now expired. If you have postcards remaining, please direct your providers to this CME instead! Postcards to Doctors is going strong! Postcards to Doctors, which we launched in 2019, is a medical education campaign in the US that focuses on getting medical professionals to learn more about ME. Our aim is to

#MEAction’s ACTIVIST CAMP! – the Highlights!

February 23, 2021 No Comments

It’s a wrap! Last weekend concluded the final session #MEAction’s first ever ACTIVIST CAMP!, a teach-in series for activists in the United States. We are so proud of this program and what it has accomplished. Congrats to our new grads! #MEAction ACTIVIST CAMP! aimed to deepen our campers’ engagement with activism – teaching our collective

Celebrating Postcards to Doctors: Final Report

January 28, 2020 2 Comments

This article references the 2019 Postcards to Doctors initiative. Find the page for Postcards to Doctors 2020 here. We’re incredibly pleased to announce that we not only met but exceeded our initial goal of sending 6,000 postcards out into the world! And we could not have done it without you. As always, I am bowled over

NIH Receives Surprise Holiday Gift from ME Community

January 10, 2020 No Comments

It was a big holiday season for Dr. Walter Koroshetz who oversees ME/CFS research at the National Institutes of Health (NIH)! As part of our Cards for Koroshetz Campaign, people with ME, caretakers and allies sent Dr. Koroshetz 500 holiday cards with their stories of living with a neglected and shunned disease. They told Dr. Koroshetz

Host a Postcards to Doctors party this holiday season!

November 27, 2019 No Comments

Host a Postcards to Doctors party this holiday season! And announcing: #MEAction’s first Pinterest boards! Together, the #MEAction community has made the Postcards to Doctors initiative an incredible success: there have been approximately 5,500 requests for postcards to doctors across 43 states! We are so thankful to see people across the country step up to

NIH: Dr. Koroshetz Declines to Take Urgent Action for ME. Read His Response and Take Action!

November 17, 2019 20 Comments

NINDS Institute director, Dr. Walter Koroshetz, has made it clear that neither he nor the National Institutes of Health (NIH) are ready to take the immediate actions needed to address the crisis of myalgic encephalomyelitis (ME). In response to #MEAction’s recent letter calling on the NIH to ACTION now for ME, Dr. Koroshetz responded with bureaucratic excuses

Category: #MEAction Projects