#MillionsMissing 2025: Sending Out An SOS
April 2, 2025
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For #MillionsMissing 2024, #MEAction is sending out an SOS.
Category: Long Covid
White House Halts Funding for Long COVID Grants
March 27, 2025
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The White House is terminating funding for NIH RECOVER grants awarded in 2022 and 2023 for Long COVID.
Office of Long COVID at HHS Closing
March 25, 2025
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Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are
Trump Cuts Funding for ME/CFS Centers at Columbia University
March 20, 2025
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We are writing to you with an urgent call to action. The Trump administration has cut funding for the Center for Solutions for ME/CFS at Columbia University as part of a broader $400 million funding termination at the university. This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research
Long COVID Awareness Day
March 14, 2025
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#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
March 6, 2025
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Press Contact: #MEAction: press@meaction.net Patient & Expert Voices Must Be Heard: Advocates Urge Administration to Reinstate Long COVID Advisory Committee #MEAction and the Patient-Led Research Collaborative – leading organizations advocating for people with Long
Submit Long COVID Drug Recommendations to RECOVER-TLC!
October 7, 2024
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Last month, RECOVER TLC met at NIH headquarters in Bethesda. The goal was to initiate a drug development strategy for Long COVID clinical trials. Now, RECOVER TLC has opened the RECOVER-TLC Intervention Information Request Form, where you can make suggestions about which drugs and other interventions to trial! Anyone can submit a therapeutic for consideration
The RECOVER-Treating Long COVID (RECOVER TLC) The Path Forward
September 26, 2024
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The RECOVER-Treating Long COVID (RECOVER TLC) Kick-off Meeting was Sept 23-25 in person and over Zoom. I had the privilege of attending over Zoom and Jaime Seltzer, #MEAction’s Scientific Director, represented the needs of the ME community in person and as an invited member of a panel on clinical trial design. There were many speakers
#MEAction Awarded 3-Year Grant by Minnesota Department of Health Long COVID Program
July 30, 2024
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Breaking news! #MEAction has just been awarded a 3-year grant by the Long COVID Program of the Minnesota Department of Health (MDH) to address the impacts of Long COVID, ME/CFS, and related conditions, across the state and to serve disproportionately impacted communities. #MEAction’s work will focus on better connecting Minnesotans with ME/CFS, Long COVID, and
#MEAction Meets with the Office of Long COVID Research and Practice
January 25, 2024
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On January 17th, 2024, #MEAction convened a constructive meeting with Dr. Ian Simon, the newly appointed director of the Office of Long COVID Research and Practice within the U.S. Department of Health and Human Services (HHS). The Office of Long COVID Research and Practice staff demonstrated a willingness to understand the connection between ME and