Long COVID Awareness Day
March 14, 2025
No Comments
#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
Category: Long Covid
Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
March 6, 2025
No Comments
Press Contact: #MEAction: press@meaction.net Patient & Expert Voices Must Be Heard: Advocates Urge Administration to Reinstate Long COVID Advisory Committee #MEAction and the Patient-Led Research Collaborative – leading organizations advocating for people with Long
Submit Long COVID Drug Recommendations to RECOVER-TLC!
October 7, 2024
No Comments
Last month, RECOVER TLC met at NIH headquarters in Bethesda. The goal was to initiate a drug development strategy for Long COVID clinical trials. Now, RECOVER TLC has opened the RECOVER-TLC Intervention Information Request Form, where you can make suggestions about which drugs and other interventions to trial! Anyone can submit a therapeutic for consideration
The RECOVER-Treating Long COVID (RECOVER TLC) The Path Forward
September 26, 2024
No Comments
The RECOVER-Treating Long COVID (RECOVER TLC) Kick-off Meeting was Sept 23-25 in person and over Zoom. I had the privilege of attending over Zoom and Jaime Seltzer, #MEAction’s Scientific Director, represented the needs of the ME community in person and as an invited member of a panel on clinical trial design. There were many speakers
#MEAction Awarded 3-Year Grant by Minnesota Department of Health Long COVID Program
July 30, 2024
No Comments
Breaking news! #MEAction has just been awarded a 3-year grant by the Long COVID Program of the Minnesota Department of Health (MDH) to address the impacts of Long COVID, ME/CFS, and related conditions, across the state and to serve disproportionately impacted communities. #MEAction’s work will focus on better connecting Minnesotans with ME/CFS, Long COVID, and
#MEAction Meets with the Office of Long COVID Research and Practice
January 25, 2024
1 Comment
On January 17th, 2024, #MEAction convened a constructive meeting with Dr. Ian Simon, the newly appointed director of the Office of Long COVID Research and Practice within the U.S. Department of Health and Human Services (HHS). The Office of Long COVID Research and Practice staff demonstrated a willingness to understand the connection between ME and
Historic Hearing on Long COVID in the Senate HELP Committee
January 24, 2024
1 Comment
The U.S. Senate HELP Committee held a historic hearing about Long COVID last Thursday to discuss advancing research and improving patient care. #MEAction contacted the press to alert them to the hearing, and issued a follow-up press release sharing highlights from the hearing, and explaining the connection with ME/CFS. Our Scientific Director worked behind the
Senate HELP Committee Shows Strong Support for Long COVID
January 19, 2024
1 Comment
The U.S. Senate HELP Committee held a hearing on Long COVID yesterday to discuss advancing research and improving patient care.
Senate HELP Committee to Hold Hearing on Long COVID
January 17, 2024
2 Comments
U.S. Senate HELP Committee to Hold Hearing on Long COVID The U.S. Senate Committee on Health, Education, Labor & Pensions will host a hearing on addressing Long COVID, advancing research and improving patient care TOMORROW, Thurs. 18 at 10 a.m. ET. Watch the hearing and find more details HERE. Angela Meriquez Vázquez, M.S.W. will be
CANARY CORPS – Alison’s Story
December 4, 2023
No Comments
Have you registered yet to join us this Wednesday, December 6th at 4pm ET / 1pm PT for a community presentation introducing the Canary Corps program? Ahead of Wednesday’s event we wanted to share with you Alison’s story. Alison Sbrana will be co-presenting this event, and much of the design of Canary Corps has been