Featured news Archives

Tuller: PACE authors “wrapping themselves in victimhood”

February 1, 2016 No Comments

Journalist and public health expert Dr. David Tuller has, on Virology Blog, attacked a recent commentary in Nature that included “hard-line opponents” of research into chronic fatigue syndrome with climate change denialists and pro-tobacco campaigners who engage in “endless information requests, complaints to researchers’ universities, online harassment, distortion of scientific findings and even threats of

NIH Grant Reviewers in 2015

January 28, 2016 No Comments

Thank you to Jennifer Spotila for giving us permission to reprint her article and for all of her great investigative work. The original post can be found on her blog at http://www.occupycfs.com/. NIH: Who Reviewed Grants in 2015 In order to get NIH funding, a researcher has to succeed in several levels of application review. A persistent controversy

Solve ME/CFS Initiative Grades HHS on CFSAC Response

January 22, 2016 No Comments

Solve ME/CFS Initiative Grades HHS on CFSAC Response The Solve ME/CFS Initiative has created a report card for HHS’ response to the recommendations made by the Chronic Fatigue Syndrome Advisory Committee (CFSAC) after its August meeting. The grades the organization gave on the HHS response to the 13 CFSAC recommendations range from A- (one) to F (four).

UK study refuses to release data: PACE trial

January 21, 2016 2 Comments

Large controversial UK study still refusing to release data: latest update on the PACE trial

James Coyne to talk in Belfast on “scandal” of the PACE trial

January 20, 2016 1 Comment

Talk by James Coyne in February Professor James Coyne of the University of Pennsylvania will be giving a talk entitled “The scandal of the £5 million UK PACE trial for ME: what can be done?” to two separate audiences in Belfast, Northern Ireland, in February. One talk is directed specifically at professionals, including Members of

Australian Health Dept answers questions on ME

January 20, 2016 14 Comments

Most of the $2.4 million in research the Australian government says is for CFS is spent on psychology, exercise or for other conditions such as hepatitis C. No studies funded in a decade.

QMUL reject PACE FOI request from Ron Davis and colleagues

January 19, 2016 No Comments

Queen Mary University of London (QMUL), acting on behalf of the authors of the highly controversial PACE trial, has rejected a request made by a group of scientists for raw, anonymised data from the trial. The group was led by world-famous geneticist Professor Ron Davis of Stanford University, whose son, Whitney Dafoe, is gravely ill

Lancet Psychiatry publish Coyne and Laws PACE critique

January 19, 2016 1 Comment

Lancet Psychiatry have published three letters criticising a paper published in the journal on the long-term follow-up results of the PACE trial. A response from the study authors was also published. The paper, published in October, showed little difference in self-rated fatigue and physical function between the four treatment arms and thus no benefit of

James Coyne: PLOS One lawyers “squaring off” against PACE authors

January 9, 2016 No Comments

Professor James Coyne has provided an update on his request to PLOS One that they enforce their data-sharing policy upon the authors of the PACE trial, who published one of their papers in the journal. Professor Coyne had requested the data from Professor Paul McCrone under PLOS One’s policy. However, Professor McCrone’s administrative institution, King’s

Rehmeyer and Tuller: PACE trial didn’t prove graded exercise safe for CFS

January 7, 2016 No Comments

Journalists Julie Rehmeyer and Dr. David Tuller have published an analysis concluding that the PACE trial failed to demonstrate the safety of graded exercise therapy, despite its authors claiming that it was a safe treatment for patients with chronic fatigue syndrome (CFS). Their article, on Virology Blog, concludes that “the PACE researchers’ attempts to prove

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