Category: Featured news

The UK CFS/ME Research Collaborative to livestream AGM on 27 April

The 2016 Annual General Meeting of the UK CFS/ME Research Collaborative (CMRC) will be livestreamed on Wednesday 27 April, from 2.45 pm to 3.30 pm British Summer Time. Viewers must preregister. The agenda of the AGM is as follows: Welcome and apologies Annual report 2014-15 Charter revisions/approval Plans for 2015-16 Membership of the Board Any other business

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Transcript: Solve ME/CFS Interviews Dr. Avi Nath

Dr. Zaher Nahle from the Solve ME/CFS Initiative recently interviewed Dr. Avi Nath, who is leading the intramural study on ME/CFS at the NIH. The intramural study on ME/CFS at the NIH has raised some concerns in the ME/CFS community: the appointment of Dr. Walitt, who has made statements implying that he views ME/CFS as

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Updates from the first #MillionsMissing Meeting

Last week, #MEAction had its first planning call for the May 25th #MillionsMissing protest. The protest, with the theme #MillionsMissing, brings attention to the millions of people with ME/CFS missing from their work, their families, and their lives, and the millions of dollars missing from research funding.  To show this invisible illness, we are asking

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British doctor known for defending children prohibited from treating ME patients

On 20 April, the UK’s General Medical Council (GMC) imposed limits on the medical license of Dr Nigel Speight, well known for his work in protecting children with ME/CFS against inappropriate psychological intervention and removal from their families. The limits come after a complaint from Esther Crawley, medical advisor to the Association of Young People with ME.

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#MEAction welcomes our new deputy community organizer

Paige is a recent graduate from NC State University with a degree in biomedical engineering. She was diagnosed with POTS five years ago and has been inspired to make a difference for those living with chronic illness. Paige started a disability transportation service at her university and plans to use those collaborative skills as Deputy

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#MEAction welcomes our new community organizer

Adriane Tillman is a writer, journalist, traveler, thinker, lover of art, dance and books. Adriane graduated with degrees in literature and Russian language. She worked as a newspaper journalist for five years, and now consults in marketing and copywriting. She has lived in many places across the US and beyond. She grew up in Cincinnati,

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#MEAction Welcomes our new managing editor

We would like to welcome Jaime to our team at #MEAction as our new managing editor. With an MS, a freelance writing career, and a current teaching position in organic chemistry at the graduate level, Jaime comes to us with a background in writing, education, and science. An active member of Phoenix Rising for over

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#MEAction USA leaves the USAWG

We wanted to take this opportunity to announce to the community that #MEAction USA has decided to formally leave the US Action Working Group (USAWG). We will definitely continue to collaborate with many of its members and welcome them, and all organizations and individuals in the community, to use this platform to share their work and

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