The Sleepy Girl Guide to Social Security Disability (U.S.)
April 17, 2017
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Renegade disability guide for Myalgic Encephalomyelitis
Category: Featured news
Webinar: Dr. Levine and Montoya to discuss developments in ME/CFS research
April 13, 2017
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On Thursday, April 20, Solve ME/CFS Initiative (SMCI)‘s research webinar series will be a double feature with Dr. Susan Levine and Dr. Jose Montoya at 10 a.m. PT/ 1 p.m. ET. Dr. Levine is founder of the Medical Office of Susan M. Levine, MD. Over the last two decades, Dr. Levine has collaborated with other clinicians and
The ME/CFS Biomarker Rollercoaster
April 11, 2017
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Biomarkers are a holy grail for ME/CFS because they have the potential to help diagnose disease, track disease progression or progress and help inform which treatments might help. The need for biomarkers is immense and researchers will identify many possible ones. It is encouraging that there have been more possible biomarker reports recently. It can be so hard
Thirty U.S. House Reps Show Support for Appropriation Language
April 10, 2017
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Thirty U.S. House representatives signed a letter last week urging their colleagues on the House Appropriations Committee to attach language to its report on the fiscal year 2018 budget that encourages the NIH, CDC and HHS to accelerate and enhance its work in research and education for ME/CFS.
Australian scientists publish study showing potential biomarker for ME
April 10, 2017
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Scientists in Canberra and Melbourne have just published a study claiming to have found that activin B is a biomarker for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
Participants with ME/CFS were recruited using the Canadian Consensus Criteria.
Engaging People with ME as Partners in the CRCs
April 2, 2017
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The National Institute of Health’s RFA for ME/CFS Collaborative Research Centers breaks new ground. For the first time, the funding agency is strongly encouraging researchers “to establish partnerships with patients groups and solicit their input” as part of their research plan. #MEAction assembled a team of volunteers to assist researchers in thinking about this, and
Musician with ME produces EP from her bed
April 1, 2017
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#MEAction is working with musician Kaeley Pruitt-Hamm to re-release her music video, “Believe Her,” to showcase the broader face of the ME community. Send in a still photo or 5-second clip of yourself in bed holding a sign that says #BelieveME or #BelieveHer by April 30th. We will include these clips of people with
Australia University will Study Effects of Xbox on Physical Activity in ME/CFS Patients
March 26, 2017
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The University of South Australia will begin a research study that looks at how active video gaming can increase physical activity in adults with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.
The study has no set research criteria, despite studies that show 2 out of 5 patients are misdiagnosed with CFS/ME in Australia.
IL. House of reps shows support for ME
March 25, 2017
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The plight of people living with Myalgic Encephalomyelitis (ME) was heard in Illinois this week. The parent of a young daughter with ME, Amy Mooney, worked with her state representative, Michael J. Zalewski, to introduce a state resolution that recognizes ME as a tragic, disabling disease, and that commits to improving the availability and quality of medical care
"Unrest" premieres in Copenhagen to major media coverage
March 23, 2017
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There is one more screening of Unrest at the CPH:DOX film festival on March 24th, and then Unrest heads to the RiverRun International Film Festival in Winston-Salem on March 31st. Unrest made its international and European premiere in Copenhagen, Denmark at CPH:DOX, one of the leading festivals for documentary film in the world, on March 17.