What Did the Parliamentary Unrest Event Achieve?
November 1, 2017
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Tuesday 24th Oct., 2017 will long be remembered as a significant day for anyone involved in ME politics.
Category: Featured news
OMF Introduces #OMFScienceWednesday
October 30, 2017
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Learn about science that OMF is supporting. Follow OMF on Facebook and Twitter.
NICE: Listen to the People
October 30, 2017
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As the U.K. prepares to review its national clinical guidelines for ME, it is high-time that the National Institute for Health and Care Excellence (NICE) listens to the evidence showing that Graded Exercise Therapy (GET) is harming people with Myalgic Encephalomyelitis. Listen to the words of the words of the director of the National Institute of
Is the Dutch Health Council really going to Ignore 10,000 signatures?
October 11, 2017
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Keep up-to-date on this issue by following the Twitter accounts @mecvsnieuws and @ME_gids More than 10,400 signatures for the Dutch petition ‘ME is not MU(P)S’ (Medically Unexplained (Physical) Symptoms) was presented to Prof. van Gool, president of the Dutch Health Council three weeks ago on September 18th. The petition aims to hold the Dutch Health Council
A New Era for ME/CFS Research – SMCI’s Discovery Forum
October 9, 2017
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Announcing Discovery Forum 2017: A New Era in ME/CFS Research
Individual Community Symposium Talks Available on OMF YouTube Channel
September 29, 2017
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Watch individual presentations and Q&A from the Community Symposium on the Molecular Basis of ME/CFS.
NIH announces centers for ME/CFS research
September 27, 2017
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The NIH announced the grants for three Collaborative Research Centers (CRC) and a Data Management Coordinating Center (DMCC) that will work together as a consortium for ME/CFS. These grants will be managed by National Institute of Allergy and Infectious Diseases and National Institute of Neurological Disorders and Stroke. The total cost of the projects for fiscal year
Parliament EDM 271 Urges NICE to Update Guideline on ME
September 21, 2017
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UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new guideline is robust enough to protect and help people with ME for generations to come. We still need you
As Summer Ends, A Warning to NIH
September 20, 2017
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Johanna Kaiser, a person with ME, sent this open letter over Labor Day to the director of the National Institutes of Health (NIH), Dr. Francis Collins, and the director of National Institute of Neurological Disorders (NINDS).
Tools to Help Children with ME/CFS Succeed
September 20, 2017
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New resources are available to help parents and educators provide accommodations and resources to help children succeed in school.