Featured news Archives

Category: Featured news

Interview with #MillionsMissing France: Rally in Bourges

October 26, 2022 No Comments

#MillionsMissing France has been busy.

financial chart with line rising in green interrupted by coronovirus after which line goes down in red

Long COVID’s U.S. Economic Impact Est. $140-$600 Billion Annually

October 7, 2022 No Comments

Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.

caring african-american medical nurse with hand on shoulder of a black senior patient in headwrap in office

New Diagnostic Codes for ME/CFS in the US ICD-10-CM

October 6, 2022 1 Comment

Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records

A group of people stand outside the Scottish Parliament building at Millions Missing Scotland 2022 looking serious. Many of them are wearing red ME Action t-shirts. Some people are holding signs that say Millions Missing. In the middle, someone is holding a large piece of card with a pledge on it and signatures of MSPs. One person is in a wheelchair and one is on a mobility scooter.

Members of the Scottish Parliament pledge their support for #MillionsMissing

October 6, 2022 No Comments

On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made up for in engagement from

#MillionsMissing 2022: Activism From Home Was Beyond Impressive

September 30, 2022 No Comments

There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing press wins. You tuned into the live stream on Twitter. You saw the article that cover our government’s response. We are thrilled. And we want to take a moment to acknowledge all of the amazing activism

hand holding a paper sheet with injustice, unfairness symbol over crowded street background.

Tell HHS about your experience of healthcare discrimination

September 29, 2022 No Comments

People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice. The deadline to submit a

#MEAction & Mayo win Grant for Diagnostic Improvement

September 22, 2022 2 Comments

Amazing news! #MEAction and Mayo Clinic applied for a grant together from the Society to Improve Diagnosis in Medicine to transform the diagnostic and treatment process at Mayo Clinic Rochester for people with ME/CFS!

#MillionsMissing Press Hits are Rolling In!

September 20, 2022 No Comments

The press hits are rolling in! The media showed up in a big way yesterday to cover our #MillionsMissing protest in front of the White House. One day after President Biden declared the “pandemic is over,” our community was at the gates of the White House to send Biden a message that a pandemic of chronic

People lying on the sidewalk in front of the white house

Protest at White House to Tell President Biden “Pandemic Is NOT Over”

September 19, 2022 2 Comments

Protesters disabled by Long COVID and myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) lay down on the White House sidewalk today risking arrest to tell President Biden that the pandemic is not over, and that millions are being disabled from post-viral disease, including Long COVID and ME/CFS.

Americans Disabled By Long COVID and ME/CFS Protest Biden’s Claim that “Pandemic Is Over.”

September 19, 2022 No Comments

Protesters disabled by Long COVID and myalgic encephalomyelitis (ME/CFS) are protesting at the White House sidewalk TODAY at 12 p.m. ET to say that the “pandemic is not over,” and to call on President Biden to declare Long COVID and ME/CFS a national emergency.