Long COVID’s U.S. Economic Impact Est. $140-$600 Billion Annually
October 7, 2022
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Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.
Category: Featured news
New Diagnostic Codes for ME/CFS in the US ICD-10-CM
October 6, 2022
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Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records
Members of the Scottish Parliament pledge their support for #MillionsMissing
October 6, 2022
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On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made up for in engagement from
#MillionsMissing 2022: Activism From Home Was Beyond Impressive
September 30, 2022
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There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing press wins. You tuned into the live stream on Twitter. You saw the article that cover our government’s response. We are thrilled. And we want to take a moment to acknowledge all of the amazing activism
Tell HHS about your experience of healthcare discrimination
September 29, 2022
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People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice. The deadline to submit a
#MEAction & Mayo win Grant for Diagnostic Improvement
September 22, 2022
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Amazing news! #MEAction and Mayo Clinic applied for a grant together from the Society to Improve Diagnosis in Medicine to transform the diagnostic and treatment process at Mayo Clinic Rochester for people with ME/CFS!
#MillionsMissing Press Hits are Rolling In!
September 20, 2022
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The press hits are rolling in! The media showed up in a big way yesterday to cover our #MillionsMissing protest in front of the White House. One day after President Biden declared the “pandemic is over,” our community was at the gates of the White House to send Biden a message that a pandemic of chronic
Protest at White House to Tell President Biden “Pandemic Is NOT Over”
September 19, 2022
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Protesters disabled by Long COVID and myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) lay down on the White House sidewalk today risking arrest to tell President Biden that the pandemic is not over, and that millions are being disabled from post-viral disease, including Long COVID and ME/CFS.
Americans Disabled By Long COVID and ME/CFS Protest Biden’s Claim that “Pandemic Is Over.”
September 19, 2022
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Protesters disabled by Long COVID and myalgic encephalomyelitis (ME/CFS) are protesting at the White House sidewalk TODAY at 12 p.m. ET to say that the “pandemic is not over,” and to call on President Biden to declare Long COVID and ME/CFS a national emergency.
New date for #MillionsMissing Scotland
September 15, 2022
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Following the postponement of #MillionsMissing Scotland, the demonstration has been rescheduled to Wednesday 28th September. #MillionsMissing Scotland will now take place on Wednesday 28th September, from 12.30-2.30pm. We appreciate this isn’t a lot of notice but we are keen to build on the momentum the event has already gained and to hold it while it