The Solve ME/CFS Initiative recently partnered with the widely-circled women’s magazine “Ms.” and connected them with renowned author Julie Rehmeyer to produce an impactful piece on ME/CFS for the Winter 2018 issue.
Pineapple Fund was so moved by the outpouring of support from the patient community and the importance of OMF’s research that they have increased their donation to a total of $5 million for research.
Dozens of people with Myalgic Encephalomyelitis and family members testified about the disease last December before the government agency responsible for advising Health and Human Services on ME/CFS – the Chronic Fatigue Syndrome Advisory Committee. Speaker after speaker testified about the incredible neglect from the government for the millions of Americans suffering for decades without adequate
We need you! #MEAction is looking for volunteers who can help our team ensure that the CFSAC recommendations are implemented, and don’t fall through the bureaucratic cracks. If you’ve worked for government agencies before, that is a bonus. We welcome all volunteers who can assist with keeping an eye on the work of this important
A Medical Education Working Group has been created by the Chronic Fatigue Syndrome Advisory Committee (CFSAC) to provide recommendations to the U.S. Secretary of Health on educating healthcare providers on ME/CFS. The working group plans to disseminate resources and clinical guidance to healthcare providers, as well as provide trainings and continuing education events. The working
Announcing $1.2M in funding for the ME/CFS Collaborative Research Center at Stanford University led by Ronald W. Davis, PhD, Director of OMF’s Scientific Advisory Board.
Australia’s National Health and Medical Research Council (NHMRC), the Australian equivalent of the NIH, has announced the establishment of an ME/CFS Advisory Committee to advise NHMRC’s CEO, Professor Anne Kelso, on current needs for research into ME/CFS, as well as clinical guidance on the diagnosis and treatment of the illness.
The American ME and CFS Society is live, and we need your participation!
Dr. Faith Newton, Deleware State University, has created several resources to help children with ME/CFS improve their educational outcomes including the newest piece, a sample physician’s letter.
This is an exciting time for ME advocacy in Boston, Massachusetts. We are preparing for our November 12th, Sunday afternoon screening of UNREST. For those who are able, join us, because it is going to be an amazing event. (Tickets available here. Note: Healthcare professions can attend for free, and there’s a $5 discount for
