Author: Dutch Citizens’ Initiative “Recognize ME” (Group ME-TheHague). In the release of its much-anticipated report, the Dutch Health Council sees no reason to advise the use of Graded Exercise Therapy for people with Myalgic Encephalomyelitis / chronic fatigue syndrome. However, the report does not go as far as to provide a rebuttal of GET or
Yes, you read right! Thanks to the incredible community outreach over the course of just a few days, TEN percent of the House of Representatives signed a letter to the chairs of the House Appropriations Committee advocating for ME/CFS. Forty-four members from twenty states and the District of Columbia signed on – thirteen more than
Following the tragic death of Robert Courtney, some of his friends created the tribute below, and provided the message that precedes it. We at #MEAction are pleased to reproduce both here. We, some of Bob’s many friends, have put together this tribute to him. We do not think it is appropriate to discuss the circumstances
Are you a caregiver (spouse, partner, sibling, parent) of someone with Myalgic Encephalomyelitis? Are you looking for a community of support, or ways to get involved in advocating for people with ME? #MEAction is excited to announce the launch of a new support network dedicated to caregivers. Please join us for our first caregivers call
“Advancing an International Research Agenda to Address ME/CFS Research Priorities,” the first International Canadian Conference on ME/CFS will be held May 3 – 5, 2018. Ronald W. Davis, PhD, OMF SAB Director and Linda Tannenbaum, OMF CEO/President will be presenting.
The first draft of the ME/CFS Common Data Elements (CDE) project is now available to review, conducted by the National Institute of Neurological Disorders and Stroke (NINDS). Read the first draft of the Common Data Elements for ME/CFS here. The purpose of the CDE Project is to standardize the collection of investigational data in order to facilitate
The main goal of the JAX CRC project is to understand how the immune system, microbiome, and metabolome are connected and disrupted in ME/CFS, and to discover the biological basis of this chronic disease. We are hopeful that the knowledge gained from these studies will help to develop molecular markers for the diagnosis of ME/CFS, and the development of new treatments based on these new targets discovered.
Most doctors, nurses and other healthcare providers belong to a medical association in order to connect to a community of their peers. These medical associations typically send out regular magazines, newsletters and emails about the latest news and topics of interest to the medical field. A great way to begin to educate an entire community
As was previously reported by #MEAction, Dr Sarah Myhill has made a formal complaint to the General Medical Council (GMC) about the authors of the PACE trial. In addition to asking people to write to the Chairman of the GMC, she has now set up an online petition which people can sign if they wish
We’re thrilled to embark on this next phase by bringing the campaign home, under the umbrella of #MEAction. This will allow us to deepen our efforts around four core areas work: public engagement & education; patient support & community organizing; advocacy; and medical & scientific outreach.
