Featured news Archives

Australia: Macquarie University Study will look for Hypochondria and Somatic Symptoms in CFS, Fibro and MCS

October 1, 2018 5 Comments

Macquarie University are recruiting people with chronic fatigue syndrome, fibromyalgia, gastrointestinal disorders and multiple chemical sensitivity for a study measuring somatic symptoms, hypochondria, anxiety and depression, catastophising and co-morbid diseases. The study was approved by the University’s ethics department. Psychiatrists at Macquarie University in Sydney sought 1,000 people for the one-year longitudinal study. The study

Australia: Three Senators Form Parliamentary Friendship Group for ME and CFS

October 1, 2018 No Comments

Three senators have formed a Parliamentary Friends of Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) group in Australia’s federal parliament. The Parliamentary Friendship group is co-chaired by Western Australian Greens Senator Jordon Steele-John, Tasmanian Liberal Senator Jonathan Duniam and Queensland Labor Senator Claire Moore. This group will provide a forum for members of the House of

NOW Adopts Resolution for ME

September 20, 2018 5 Comments

The National Organization for Women (NOW) adopted a resolution for diseases and conditions affecting large numbers of women, including myalgic encephalomyelitis (ME), at its conference this past July. The resolution is now live on NOW’s website, read the full resolution below. The resolution recognizes the need to increase research funding, raise awareness and combat stigma for

UK Coordinator Joins #MEAction Team

September 19, 2018 No Comments

#MEAction is thrilled to welcome aboard UK Coordinator, Espe Moreno, for the UK coordinator position this fall. Based in London, Espe previously worked for the Time for Unrest impact campaign in the UK, overseeing social media, screening events, and various advocacy efforts. Espe is a marketing, film and communications professional with 10+ years of international

Alphabet Soup – Your Guide to Current U.S. Actions

September 17, 2018 1 Comment

When it rains, it pours! There has been so much activity in our US health institutions that it’s easy to lose track. Here’s a handy update to help us all keep it straight. HHS (Health and Human Services) The HHS recently and without warning shut down CFSAC, the Chronic Fatigue Syndrome Advisory Committee. While flawed,

NIH Creates Council to Advance ME Research

September 15, 2018 8 Comments

The National Institutes of Health (NIH) has formed a new council focused on how best to advance research into myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The committee, called the NANDS Council Working Group for ME/CFS Research, will be comprised of scientists, clinicians, representatives from advocacy organizations, and individuals with ME, including a representative from

Scottish Lib. Dems Pass Motion for ME, with Amendment

September 13, 2018 3 Comments

ME history was made this week in the historic capital of Scotland when delegates at the Scottish Liberal Democrats autumn conference voted to support conference motion SC5: Investing in ME – Recognition, Research, and Education. So it’s official, the motion, drawn up in consultation with #MEAction Scotland, is now party policy. It is a hugely

Beauty Sleeping: A Real Life Fairytale

September 9, 2018 15 Comments

Once upon a time there lived a very beautiful princess, and the way you could tell she was beautiful was that she knew it. She didn’t bother with big puffy dresses, or make up—she was beautiful on a tyre swing out in the woods of her poor little kingdom, and she was beautiful fixing a

HHS Secretary Kills CFSAC!

September 7, 2018 12 Comments

If you were on the CFSAC committee, you awoke to the following email in your inbox yesterday morning: Good morning, I’d like to personally extend my gratitude to you for serving as a member of the Chronic Fatigue Syndrome Advisory Committee (CFSAC).Your input as a subject matter expert in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has

Scottish Liberal Democrats will Vote on Motion for ME

September 7, 2018 1 Comment

At the Scottish Liberal Democrats conference this Saturday in Dunfermline, party member Emma Walker will present a motion about Myalgic Encephalomyelitis (ME), focussing on the need for biomedical research and the removal of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) as treatments for ME in Scotland. If it passes, it will become Liberal

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