Listen to the article: Part 1: Part 2: In the past two weeks, The Guardian/The Observer and Psychology Today US have published articles portraying the myalgic encephalomyelitis (ME) community as an angry, misguided mob using social media to denigrate scientific research. Both articles focus on the criticism that Dr. Michael Sharpe, one of the
#MEAction is launching an initiative that will allow you to help educate your local clinicians, called Postcards to Doctors! Postcards to Doctors will work a lot like Postcards to Voters. The Postcards to Voters campaign leveraged handwritten postcards to individuals in order to encourage them to vote. Postcards to Doctors will use the same model
The ME community is rallying around 17-year-old Jehan “Gigi” who has been hospitalized with severe myalgic encephalomyelitis (ME) in the UK, and is now being threatened with being sectioned – forced institutionalization – against her will to a psychiatric hospital for her inability to eat, speak or walk due to the effects of severe ME
Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical students, med-peds, internal medicine and family practice residents. We are delighted to announce the #MEAction Blue Ribbon fellowship at the Bateman Horne Center (BHC) with Dr. Lucinda Bateman. The clerkship/rotation will consist of one month spent
The #MEAction Blue Ribbon Fellowship is excited to announce that medical student, Christopher Larrimore of Nova Southeastern University, has been selected as one of our fall fellows to support his continued research into myalgic encephalomyelitis (ME). The #MEAction Blue Ribbon Fellowship, now under the stewardship of #MEAction, supports the work of medical students to undertake
The final report from Australia’s National Health and Medical Research Council’s (NHMRC’s) ME/CFS Advisory Committee, established in late 2017, has been released. The committee was tasked with advising NHMRC’s CEO on current needs for research and clinical guidance for ME/CFS in Australia.
The love of my life battles ME/CFS. It’s a disease that my father has also struggled with since I was a boy, so it’s one I know well. I knew life wasn’t going to be simple when we met, but I dove in head-first anyway. I can’t say it’s been easy, but I can definitely
A Bay area-based photographer is seeking people with myalgic encephalomyelitis (ME) who are willing to share their stories and to be photographed for his new awareness raising initiative. Photographer Mark Tuschman’s work can be seen on his website, his book project on the lack of human rights for women and girls and through his recent project on
Originally published on ME Australia. by Sam* Sam (*not her real name) is a teenager living in Australia’s largest city without access to treatment to help her. Sam was prescribed graded exercise therapy (GET) and cognitive behavioural therapy (CBT) repeatedly. After doing GET, Sam became housebound. Sam now has very severe ME and says even
By Christopher Armstrong, PhD, OMF Science Liaison When the Harvard ME/CFS Collaborative at Harvard Affiliated Hospitals was initiated last year with funds from Open Medicine Foundation (OMF), it was considered a commitment to co-leaders, Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, PhD, to begin a research operation in one of the world’s most respected academic institutions. The Harvard
