Featured news Archives

#MEAction Seeks Applicants for Blue Ribbon Fellowship at Bateman Horne Center

July 24, 2019 2 Comments

Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical students, med-peds, internal medicine and family practice residents. We are delighted to announce the #MEAction Blue Ribbon fellowship at the Bateman Horne Center (BHC) with Dr. Lucinda Bateman. The clerkship/rotation will consist of one month spent

Announcing #MEAction’s Blue Ribbon Fellow: Investigating the Role of Folate in ME

July 24, 2019 No Comments

The #MEAction Blue Ribbon Fellowship is excited to announce that medical student, Christopher Larrimore of Nova Southeastern University, has been selected as one of our fall fellows to support his continued research into myalgic encephalomyelitis (ME). The #MEAction Blue Ribbon Fellowship, now under the stewardship of #MEAction, supports the work of medical students to undertake

Australia’s ME/CFS Advisory Committee Releases Final Report

July 22, 2019 No Comments

The final report from Australia’s National Health and Medical Research Council’s (NHMRC’s) ME/CFS Advisory Committee, established in late 2017, has been released. The committee was tasked with advising NHMRC’s CEO on current needs for research and clinical guidance for ME/CFS in Australia.

Aid Without Asking: How to Support Someone with ME

July 10, 2019 No Comments

The love of my life battles ME/CFS. It’s a disease that my father has also struggled with since I was a boy, so it’s one I know well. I knew life wasn’t going to be simple when we met, but I dove in head-first anyway. I can’t say it’s been easy, but I can definitely

Photographer Seeking Bay Area Subjects to Tell Story of ME

July 9, 2019 No Comments

A Bay area-based photographer is seeking people with myalgic encephalomyelitis (ME) who are willing to share their stories and to be photographed for his new awareness raising initiative. Photographer Mark Tuschman’s work can be seen on his website, his book project on the lack of human rights for women and girls and through his recent project on

Australian Teenager with Severe ME Describes Forced Psychiatric Treatment

June 28, 2019 No Comments

Originally published on ME Australia. by Sam* Sam (*not her real name) is a teenager living in Australia’s largest city without access to treatment to help her. Sam was prescribed graded exercise therapy (GET) and cognitive behavioural therapy (CBT) repeatedly. After doing GET, Sam became housebound. Sam now has very severe ME and says even

The ME/CFS Harvard Collaboration Holds its First Symposium

June 28, 2019 No Comments

By Christopher Armstrong, PhD, OMF Science Liaison When the Harvard ME/CFS Collaborative at Harvard Affiliated Hospitals was initiated last year with funds from Open Medicine Foundation (OMF), it was considered a commitment to co-leaders, Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, PhD, to begin a research operation in one of the world’s most respected academic institutions. The Harvard

#MEAction Launches its U.S. State Chapter Initiative

June 27, 2019 No Comments

We’re so excited to announce we’re growing our community’s impact through the expansion of #MEAction USA’s formal State Chapters. #MEAction USA’s State Chapters build local capacity around volunteer engagement, congressional outreach, local and state advocacy, and medical education, and support awareness raising efforts for ME. State chapters also act as laboratories to incubate new ideas

I’m angry, but I’m not alone.

June 19, 2019 No Comments

I’m angry, but I’m not alone. Hi, my name is Ben HsuBorger, Director of Global Community and Campaigns for #MEAction, and I’m a person living with myalgic encephalomyelitis for over 14 years. I’m deeply grateful for the community and tribe I’ve found at #MEAction that remind me I’m not alone — and I want to

Why the Fight is Personal

June 17, 2019 1 Comment

I am so honored to work with the #MEAction community on a daily basis. Our organization is fighting hard everyday to communicate the truth about myalgic encephalomyelitis (ME) – to shout it out loud and clear – to the world. My role as the #MEAction Editor & Communications Manager is to support, guide and spearhead

Category: Featured news