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Category: Featured news

Graphic of yellow canary over black and white photo of a coal mine. Text reads "Canary Corps"

CANARY CORPS – Alison’s Story

December 4, 2023 No Comments

Have you registered yet to join us this Wednesday, December 6th at 4pm ET / 1pm PT for a community presentation introducing the Canary Corps program? Ahead of Wednesday’s event we wanted to share with you Alison’s story. Alison Sbrana will be co-presenting this event, and much of the design of Canary Corps has been

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A rectangle image with a blueish/purple background. The words, "A Year of Exciting Medical Education Achievements" is in white font on the left hand side with the #MEAction logo underneath. On the righthand side is an image of Jaime Seltzer with a step and repeat and poster at the SDMI conference.

A Year of Exciting Medical Education Achievements

November 29, 2023 No Comments

A year ago, we were proud to announce that #MEAction and Mayo Clinic Rochester had won a grant for diagnostic improvement, with Ravindra Ganesh, and Stephanie Grach, and I on the grant as co-investigators. Our project, Improving Diagnostic Accuracy of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Through Implementation of an Enhanced Education Protocol and Care Process Model

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a light orange rectangle with a burnt orange outline. in the box, there are orange flag garlands hanging in both top corners with orange confetti in the middle and at the top. in the bottom corners fall leaves. in the middle of the box the word, "OUR BOLDEST THANKS" in burnt orange. the #MEAction logo at the bottom.

#MEAction Shares Our Thanks for Your BOLD ACTIONS

November 21, 2023 1 Comment

During this time of thankfulness and gratitude, #MEAction staff wants to share what BOLD ACTIONS we are thankful our volunteers and community have taken throughout the year. We thought we could reflect together on all that we have accomplished this year and how every single one of us is important in this powerful community. A

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red rectangle. on the left side of the rectangle an image of a desktop computer that features the mepedia home page. the words "Live Now!" are stacked four times and fall behind the desktop image. on the right side of the rectangle, the words " check out the updated, expanded, and revamped mepedia! then there is the #mepedia logo with the words a project of #MEAction at the bottom.

Check out the Updated, Expanded, Revamped MEpedia!

November 15, 2023 1 Comment

Great news! About six months ago, we began a project to update, expand, and revamp MEpedia. Due to a generous grant, we were able to create a project scope, hire respected experts in accessibility and MediaWiki development, and make several important changes to MEpedia! Visit the New MEpedia MEpedia is a vital resource MEpedia is one of the most utilized resources for researchers,

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Graphic of yellow canary over black and white photo of a coal mine. Text reads "Canary Corps"

CANARY CORPS – New Grassroots Program Coming Soon

November 6, 2023 No Comments

I’ve got exciting news to share! In early 2024, #MEAction will launch a new grassroots, peer-run program in the United States to help people with ME, Long COVID, and other infection-associated chronic illnesses find and access local services and support for people with disabilities. This will be an innovative and radical program that is run

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red/orange rectangle image with the words: Apply for 2023 appear in a gray round bubble that lays atop a white box that says NIH Conference Travel Scholarship. Under the box, the words new travel scholarship for providers and medical students to the (NIH) Conference: Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID, December 12- 13, 2023 Bethesda, MD appear. The #MEAction logo is on the left hand side of the image

Announcing: New NIH Conference Travel Scholarship for Providers and Medical Students!

October 26, 2023 No Comments

#MEAction is thrilled to announce a new travel scholarship for providers and medical students to the National Institutes of Health’s (NIH) Conference, Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID, this coming December 12- 13, 2023 in Bethesda, MD. #MEAction is providing this opportunity for one to two promising medical students

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Red Rectangle: #MEAction logo on the top, with the words Advocacy Win! NIH announces they will designate people with disabilities as a population with health disparities! in white font.

Advocacy Win! Disability Partnerships Make a Difference for People with ME

October 6, 2023 No Comments

The National Institutes of Health (NIH) announced they will designate people with disabilities as a population with health disparities. This is a win that could have a large impact on people with ME and the millions of people with disabilities across the country. “This designation recognizes the importance and need for research advances to improve

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red rectangle image with gold fireworks in each corner. #MEAction logo and the words, "State Chapter Success Stories" in white font in the center.

#MEAction State Chapters Are Making Advocacy Moves

October 4, 2023 No Comments

#MEAction is thrilled to share the incredible work our State Chapters have been up to over the past couple of months! They continue to amaze us daily with their dedication and hard work to bring awareness to the ME community. Read more about their success stories: California:  The University of California has added some disclaimers

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Image is a sky blue rectangle, with an image of the #MEAction Maryland's logo that has the words Maryland State Chapter over an image of a lighthouse. On the righthand side if the image are the words, Join #MEAction's Marylans's #HelpMESenator Campaign in black font.

Join #MEAction Maryland’s #HelpMESenator Campaign

September 28, 2023 No Comments

We are writing this article to share some exciting news! On Tuesday, September 26, ME advocates delivered copies of the book, The Puzzle Solver, by Tracie White with Ronald W. Davis, PhD, along with information about ME and Long Covid to Senators on the Hill. The books were donated by an individual living with severe ME/CFS in an effort to raise

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