UK COVID-19 Vaccine Priority and Template Letters
February 12, 2021
1 Comment
The JCVI make it clear that the vaccine priority list is not exhaustive and clinical judgement should be applied for people with ME.
Category: Featured news
APPGs should collaborate on ME and Long Covid
February 9, 2021
1 Comment
#MEAction UK has highlighted three specific areas of overlap that could benefit from a collaborative approach by the All Party Parliamentary Groups.
Latest report shows people with ME have been failed by Scottish Government
February 5, 2021
1 Comment
The Scottish Government has said it must not wait to address the needs of the ME community, but its latest report indicates that this is precisely what it has done and continues to do.
We’re Asking Congress To NOT Forget ME!
February 4, 2021
No Comments
COVID-19 has significantly changed our lives in so many ways. With the recent increase in funding to study long COVID, there is understandably mixed-feelings in the ME community. While everyone wants those with long COVID to have the success people with ME so desperately deserve, for some, there is a fear of ME being lost
Update on Thane’s civil commitment case
February 1, 2021
4 Comments
Editor’s note: This update is provided by Thane’s care team. UPDATE: Friday, February 5 , 2021 Thane was released from the hospital today and is home! j UPDATE: Wednesday, February 3 , 2021 Thane’s lawyer shared with us that the evaluation went very well on Monday morning. Thane agreed to a “continuance for dismissal,” which means that
Hospital Trying to commit person with severe ME to mental health ward
January 29, 2021
27 Comments
PwME appeals for help “They’re trying to commit me to a mental health ward with very severe ME… I need help.” This how a brief and urgent email appeal to #MEAction began last Friday. The email was from Thane Fredrickson (also known as Thane Black on social media), a person with very severe ME who
UK press team hits again with Mail Online article
January 15, 2021
No Comments
#MEAction UK’s press team was instrumental in getting an excellent article published in the Daily Mail at the beginning of January. The article criticises the blanket advice of GPs to recommend exercise for long COVID patients without taking into consideration those with symptoms of ME, particularly post-exertional malaise.
Moving short film “This is ME” nominated for award – you can help it win!
January 15, 2021
No Comments
Moving short film “This is ME” shares more in nine minutes than most people with ME can begin to share in words alone.
#MEAction UK response to draft ME/CFS guideline from NICE
December 21, 2020
No Comments
#MEAction UK volunteers have worked to produce a robust and comprehensive response to the draft ME/CFS guideline from NICE.
New graded exercise warning on current ME/CFS guideline
December 11, 2020
3 Comments
#MEAction UK has just received a momentous email from the National Institute for Health and Care Excellence (NICE), advising us that they have updated the warning on the 2007 CFS/ME guideline, directing health professionals to the new draft recommendations on graded exercise therapy.