Activism doesn’t always have to take place in government offices or with signs and shouting; it can take place in quiet libraries. Library systems are the target of Cindy Downey’s efforts to make Jen Brea’s documentary Unrest accessible to all. Downey, of British Columbia’s Okanagan Valley, donated copies of Unrest to three provincial library
Urge your state health department to track myalgic encephalomyelitis/ chronic fatigue syndrome!
Call-to-Action: Please email your state health department and request they track ME/CFS (we have provided the email script for your convenience). A national conference will take place mid-April where states will decide which diseases to track as part of its Behavioral Risk Factor Surveillance System (BRFSS).
If government officials don’t track ME/CFS, how will they know that it is a problem!
Most doctors, nurses and other healthcare providers belong to a medical association in order to connect to a community of their peers. These medical associations typically send out regular magazines, newsletters and emails about the latest news and topics of interest to the medical field. A great way to begin to educate an entire community
Members of Parliament heard about the flaws of the PACE Trial – and its devastating effects on people with Myalgic Encephalomyelitis (ME) – in a Westminster Hall debate today. Twenty-six MPs attended the debate.
A Westminster Hall debate on the PACE trial will take place on Tuesday, 20th Feb., from 11 to 11:30 a.m. Carol Monaghan MP has secured the debate. Watch the Debate or Attend the Debate Follow the debate on Twitter by following @meactnetuk or @MEActNet. The debate will discuss the flawed science behind PACE, and how it has affected policy
CFSAC is Wednesday (12/13) and Thursday (12/14) of this week! Please stand with us as we continue to urge the U.S. government to fund ME fairly and equally. View the calendar event here. This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting will take place at the Hubert H. Humphrey Building, 200 Independence Avenue, S.W., Washington,
This guide will provide you with ideas for hosting your own impactful screening of Unrest that will be well-attended, well-publicized and garner support from important institutions in your community for Myalgic Encephalomyelitis (ME). Community screenings of Unrest have taken place all over the globe. While all successful events can look differently, below is an
Our November and December schedule for the Living w/ ME Support Group has just been announced. Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the Holidays For those who want to get involved in shaping the future of this support group be sure to join our upcoming planning session: Friday, November 3: Planning Session
The Stanford Medicine X conference is offering a scholarship to attend the April 28-29, 2018 conference, and receive funding for airfare, hotel, and meals. The ePatient scholarship is open to both patients and caregivers who are engaged or empowered. Applications are due Nov. 1 at 5 p.m. PT (8 p.m. ET). Apply now Ryan Prior talks
Want to become a part of the global team of #MEAction volunteers? Interested in getting more involved in general or using a particular skill or expertise? Want to better understand how you can use our digital platform and global network for greater ME activism and advocacy? Join us for a live video call with community
